Happy 2013!

Is it really 2013? Where has the time gone… I have found myself thinking about my blog over these past months and having this strange adverse reaction to coming back to it and writing (or honestly, even looking at it). It’s a new day, a new year… sooooooo I decided why not a new theme? Personalizing a blog is not as quick and simple as I ever think it will be. In my mind… “hey Tamiko, how about working on your blog today? let’s change the theme and post a blog today!”. Ever so excited, I go about starting the process and about 1/2 through… hours later… my mind is now wondering what the hell I was thinking. So, I push myself and repeat over and over, “Persevere! I can do this!”.

I’m not totally thrilled with the themes available in WordPress, so I start thinking… “I should be able to create my own.” Seriously? I sit and think about this for a bit and then realize I am over complicating things once again. So back to the drawing board. Just pick a theme! Okay, check! Theme selected… now I have to customize it. Oh, honestly, I could drag this out for paragraphs. The thought process of implementing a new theme to my blog page and how this brain of mine works. Some scary stuff! At the end, without going into all the crazy details, you can see what I’ve done. Even more challenging is the actual writing. I mean I can attempt to make this thing look as good as I want, but without content, what’s the point? I have had writer’s block for months (as evident by my complete lack of posts for 4+ months). That is not to say I haven’t written anything. I have started many, many posts. Let me say that again, just so you know I really have tried… I have STARTED. Unfortunately, I get an idea… so far so good… I think on it for a little bit… and then POOF! Gone. Sometimes, I even get to the point of sitting down and typing… usually about 25% into it, I completely lose my train of thought. I re-read what I have and just feel like it’s BOOORRRRR-INNNNGGG. So, I shut my laptop and walk away. Frustrated. I decided when I first started to write this blog, that I would not write just to fill the page and post. I only want to share when I actually have something to say. When I need to vent or I feel like information would be useful to others or when I don’t want to feel like I’m the only one with these crazy thoughts, feelings, emotions!

Where has the time gone? August was when I last posted. I have had my good times and bad times over these months, but on the whole… I must say I am doing my best to live. I haven’t had to walk with a cane much and the wheelchair? Getting dusty. Life is always going to bring challenges. The weather is always going to change. There will always be some sad days. I have no control over that stuff. I can only control how I manage my stress, my emotions, what I eat and how much I exercise. The eating part still makes me want to jump off a cliff more than I would like, but I am trying to accept I can’t eat whatever I want. I mean… just because pizza, ice cream, spaghetti, garlic bread, mexican food… let me stop… wait, just let me finish this thought… just because my favorite foods are all enemies to my body… that’s no reason to complain, right? Wellllll… alright, I wont’ complain. Well… I will, just not to all of you. Especially since you are all facing the same stuff I am. I really am trying to find other foods to get excited about. I am not quite there yet… but I have hopes! Soy yoghurt… yay! Kashi Honey Almond Flax chewy granola bars… yay!

Well, at least one thing hasn’t changed. I am still soooo easily distracted! I started out this post with an objective of taking a moment to wish all of you a happy 2013 and congratulate you for making through 2012. Remember to pat yourself on the back for the small wins as well as the big ones. I am happy when I can get out of bed and shuffle to the bathroom in the morning… lol!

I hope you have your 2013 goals all ready to be achieved!I completed my new year’s project in January… new year, new goals:

IMG_4053

Until next time… have a pain-free day!

Tamiko

This is AMAZING! 21 Best Fibromyalgia Blogs of 2012…

I am sitting here having a pretty down day… not feeling great. I decided to check out the stats for my blog and the most amazing thing happened. I looked at one of the referring sites and followed the link and yelled out “HOLY SHIT!”. My husband thought something really bad happened, turns around and asks me what’s wrong (with that concerned look on his face)…

I am smiling as wide as ever… a bit speechless. I said to him “I can’t believe this!” Then I held up my laptop and showed him this screen:

Completely unexpected, this made my day… wait! What am I saying, it made my week!!

Thank you Healthline for the recognition. I may just have this smile on my face for the rest of the day…

You all have a GREAT week-end!

Day 30: My Word Tree…

Today’s Prompt: Word Cloud. Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests.

Today is the last day of the WEGO Health Activist Writer’s Month Challenge. I did it! As the final post, I have created this tree in answer to the prompt… enjoy!

Day 26: Health tagline… Invisible Illness… Visible Me.

Today’s Prompt: Health tagline. Give yourself, your blog, your condition, or some aspect of your health a tagline. Make sure it’s catchy!

my foggy brain

invisible illness… visible me.

My life with Fibromyalgia, Depression and ADD.

Day 21: Health Madlib Poem… Captain Barbossa and My Gut

I have had one hell of a week. I have been to the doctor just about every day, yesterday twice. I have had my blood drawn three times and I’m waiting for all these results to help figure out what the heck is going on. I have found out I have iron deficient anemia. Now it’s on for the search for where the blood has gone… is going and where it’s coming from. I gotta say, I am happy that there is a valid, medically tested and confirmed reason for why I am so damn tired and having such a hard time focusing. I never go to the dr. for these things as they have become a way of life for me… this was just a very good reminder to check in every once in awhile. Coincidentally, Adrienne Dellwo, writer for about.com’s Fibro/CFS page posted up this article about anemia and FMS the day I found out. If you haven’t stopped by her site, you are definitely missing a crucial tool in your resource box.

Anemia & Fibromyalgia: How’s Your Iron Level?

It’s funny, the doctors and nurses are amazed at how I am still working and generally still somewhat functioning despite the level of pain and this new found anemia. It’s been kinda nice to hear, considering I have been feeling so lazy and dumb for the past couple months. I don’t mean that in a critical way, it’s just the easiest way to say how I’ve been feeling… and it’s true. In actuality, I haven’t really been completely depressed about this (wierd, right?), sadly I think I just accepted the reality of FMS. Maybe some of the realities of this illness should not be accepted so easily.

Figuring out when to call the doctor and when to carry on is so difficult. We are all so used to leaving the doctor’s office feeling like “that was a complete waste of time” (and I usually have a word that begins with F in that sentence even though I am trying not to use words that start with F…). I think we all start to give up on ever feeling good again. I had definitely given up on even thinking I would feel good about eating again. I always feel, for lack of a better term… yucky. I really want to eat something (because I LOVE food!) and then when I do… I feel like crap after. I was telling my husband, it’s like when Barbossa is telling Ms. Turner in his quarters what it feels like to never really live or die and he explains… “The more we gave ‘em away, the more we came to realize the drink would not satisfy, food turned to ash in our mouths, and all the pleasurable company in the world could not slake our lust. We are cursed men, Miss Turner. Compelled by greed, we were, but now we are consumed by it…“, he goes on to say “For too long I’ve been parched of thirst and unable to quench it. Too long I’ve been starving to death and haven’t died. I feel nothing…“. I sometimes wonder if i was on that quest and I took some of those gold coins. Someone please tell me where I put those (as you must know I forgot). I’d like to put them back.

For fun, here are a couple sites to see Barbossa’s quote:

Well, I should get on to what the prompt was for today since I am participating in the Health Activist Writer’s Month Challenge. (Please visit WEGO Health’s blog and the WEGO Facebook page to find other writers tackling the same topics—or sign up for the challenge yourself!)

Today’s Prompt: Health Madlib Poem. Go to : http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you. Feel free to post the Madlib or edit it to make it better.

Well….. I did this. I followed the prompt, went to the website and I gotta say… not impressed. This isn’t the best use of my blog, but I’ve already used my two “get out of post” cards.

This is the poem as it was turned out by the madlib…. like I said… not impressed. I look forward to the next prompt.

mysterious dog’s mysterious dog

ccarefully i have never imagine, loudly beyond
any bed, your fibromyalgia have their funny:
in your most adventurous palm tree are things which endure me,
or which i cannot listen because they are too quietly

your clumsy look somewhere will unovercome me
though i have photograph myself as rainbow,
you pretend always doctor by doctor myself as park sleep
(understanding accidentally, absentmindedly) her beautiful flower

or if your toy be to whisper me, i and
my hammock will escape very painfully, courageously,
as when the banana of this bed gather
the beach irritably everywhere promiseing;

nothing which we are to reach in this kitchen talk
the car of your quirky mom: whose dad
walk me with the sister of its brother,
runing illness and depression with each danceing

(i do not dream what it is about you that wish
and write; only something in me believe
the grandma of your fibromyalgia is strong than all park)
grandpa, not even the caterpillar, has such amazing monkey

- sing & e.e. cummings

Day 19: 5 Dinner Guests…

I am participating in the Health Activist Writer’s Month Challenge. Please visit WEGO Health’s blog and the WEGO Facebook page to find other writers tackling the same topics—or sign up for the challenge yourself!

Today’s Prompt: 5 Dinner Guests. Who are 5 people you’d love to have dinner with (living or deceased) and why?

If I could have dinner with five people, they would definitely be the following:

  1. My Godmother
  2. My Grandmother
  3. My auntie Kei-chan
  4. My auntie Tomo-chan
  5. My mom

These are all the most awesome women, all who are now passed away, except for my mom (Thank God I still have her!). I believe this would bring my mom the most joy to share another meal, more importantly the conversation, joy of being with her family and best friend and oh my goodness… the pure laughter that would result from the things that would be said. I can’t even imagine how cool this would be!

I know with all my heart, during the time we would be together, any thought of pain for both my mom and I would be non-existent. For those few hours, it would be just like the old days when I was the child listening to all the conversation going on around me, taking it all in. Learning and laughing.

What an amazing dinner this would be… good food and the best company ever. Another perfect day in the making.