Do you know the definition of insanity? I’m ready for calm…

Do you know the definition of insanity? If you agree with Enstein (which I do), insanity is… “Doing the same thing over and over again and expecting different results.” These days, I feel like I am in a constant state of insanity… of my own doing, which, in and of itself, is INSANE! I am talking about a level of unacceptability (is that even a word) that is, well, it’s unacceptable. [Is it me or does it feel like this posting is in a different language? Even I am having a hard time following myself today...] So, what was my point? Oh yeah… insanity. I am making choices these days which has put me on a path of mass destruction (cue dramatic music). Oh man, I apologize. Although in my sometimes overly dramatic world, the term “mass destruction” may be appropriate, I think we all know it’s just not true. My life is never that bad. Dramatic much? Lord have mercy. Okay, how about “I am making choices these days which are leading me down an unhealthy path”. Better? I think that sounds a little more truthful (okay a LOT more truthful, give me a break here).

rottenecard_45937984_p8rdhw6pn5We have all been there. Okay, it’s true, I am saying that because I don’t want to be the only one who feels that way… but, we have all been there, right? I realize as each day passes, the choices I am making are not very smart. I said it. I am accepting it. I’m not proud, but it hasn’t always been like this. On the roller coaster that I feel my life tends to be, right now I’d say I’m going down… almost hitting the bottom. It’s time for me to get my shit together and ride this to the straight away so I can get the strength to climb back where I should be.

I am a little too embarrassed to tell you all the stupid shit I have been doing. Seriously? You really want to know? Hmmmm, let me think on that a moment. And during this time of deep thought, I’ll digress a moment to share something with you.

My dad reads my blog each time I publish a new post. My mom has a difficult time seeing these days so my dad reads them all out loud to her. Now, the thought of my dad (or anyone for that matter) reading my thoughts OUT LOUD makes my stomach twist up a little bit. BUT! After he finishes reading my latest post, he never forgets to send me a note to let me know he read it and sharing his thoughts with me (which I always appreciate). Have I told you how amazing my parents are? A-MA-ZING! From my last post, he sent me an email and said, “Just a thought, your readers would be interested in how you went from being in an episode and being able go on a significant walk (a miracle?).  What are the signs that you are able to make a change?” He always makes me think. I admit, at first I revert back to a teenager and my habitual response to commentary from my dad kicks in… which doesn’t deserve to be said OUT LOUD (which I know he’ll do when he reads this to my mom). After a few minutes of processing, I always realize how blessed I am that my mom and dad are actually paying attention to what I am writing. So, today’s the day that I respond to his feedback. Smile dad! I bet you are laughing just a little bit right now.

My dad’s question and my response to his question play into this whole insanity phase I’m going through. It makes me think WHY did I stop all that walking? WHY did I start? Well… I started walking one rainy day when I was really upset. I needed to get some air so I put the leash on Tani (ummmmmm reminder to the readers out there that Tani is my dog and not my child so don’t call child services just yet…), anyway I put the leash on Tani and we walked out the door and I kept walking… and walking… in the rain… That day somehow motivated me to walk the next day… and the next… and I continued to walk until I was averaging three to four mile walks on a regular basis. Sometimes I would walk TWICE in one day… what? TWICE? Damn, typing that both impresses and depresses me, given the state I am in right now. There was no miracle involved in this change, it was purely out of my need one day for some fresh air… and to be honest, nothing beats walking in a little bit of rain to get some clarity.

quoteNow… why did I stop? Life. I let life get in the way, and more specifically me… I have been allowing ME to get in my own damn way for months now. It’s bullshit… and INSANE. I allowed all the shit going on in our lives to affect me to the point I am making all these stupid unhealthy decisions. So what stupid decisions you say? The kind that take awhile to turn around… let’s see… unhealthy eating (I just seem to think I deserve some kind of desserty thing before I go to bed every night, and yes I did mean to say “desserty”) and don’t get me started on chips and movie popcorn (how many movies can a girl see in a month? we are going broke from the cost of all the movies and buying up all this popcorn)… very little to no exercising… OBSESSED with Facebook games (if it’s a match 3 game, I’m playin’ it!)… tv, tv, tv…

The worst part of all this is that the smallest things seem to bring me to my mental knees (is that a saying or did I just make that up… mental knees…) My anxiety is so bad, handling even the most normal or non-stressful things are making me crazy. If something doesn’t go the right way (translation=my way), my brain shuts off and I can no longer function. ARGHHHHHHHHH!!!

I have wasteRoller_Coaster_Tracksd enough time in this land of insanity. I’m ready to go back home. I’m ready for calm and I’d like a huge side order of CONTENT to go with that calm.

So, what are the signs I am able to make a change? Well… in almost every case, it’s when I hit the bottom of the coaster ride and I realize the state I’m in. It’s today. The signs are there. I’m spiraling out of control. My pain levels are intolerable and my mental health is… well, let’s just say it’s not healthy. Today’s the day… okay tonight’s the night (it’s still just before midnight). I am going to start making good choices.

moviepopcornTomorrow is a new day and it’s going to be a good one. I will be positive. I will eat better. I will exercise. I will turn off the damn computer and stop playing these damn games… and well tv? I can’t give that up, but maybe I’ll watch it when it’s on and turn it off when I’m not (instead of just having it play in the background all the time). The tv thing… that’s going to take some work. Oh yeah, and I’m not giving up movie popcorn, but maybe I can work on the obsession.

I am kind of all over the place today. I appreciate you sticking with me through this posting. I hope you are having a good day/ night and you are making healthy choices. Sometimes that word “choice” really sucks! Makes accountability (another favorite word) so hard to deny. Those youngsters really don’t understand how good they have it… once they have to start making their own decisions, life becomes so much more challenging. My ADD is at its best in this post… that was a slight distraction from my normal closing… although it’s true… having choices is a very good thing… making choices? Well… not so easy. And on that note!!! Time to say g’night.

Thanks for stopping by today! Stay cool, calm and relaxed.

Gentle hugz.

Tamiko

This is AMAZING! 21 Best Fibromyalgia Blogs of 2012…

I am sitting here having a pretty down day… not feeling great. I decided to check out the stats for my blog and the most amazing thing happened. I looked at one of the referring sites and followed the link and yelled out “HOLY SHIT!”. My husband thought something really bad happened, turns around and asks me what’s wrong (with that concerned look on his face)…

I am smiling as wide as ever… a bit speechless. I said to him “I can’t believe this!” Then I held up my laptop and showed him this screen:

Completely unexpected, this made my day… wait! What am I saying, it made my week!!

Thank you Healthline for the recognition. I may just have this smile on my face for the rest of the day…

You all have a GREAT week-end!

Pain Program… Day 2

I have done it. I officially started the Level 2 Pain Program at Kaiser yesterday. It is focused a lot around the concept of amygdala retraining. I have seen programs to purchase out there in the online world, and this program is part of Kaiser’s offering. This is the only Kaiser currently offering to determine the success. So far… I hear it has been extremely successful. I am optimistic. Optimistic for the first time in a very long time.

In talking with my intake nurse, who has also been supporting me for a long time through this process… one of the major difference between the programs I have seen online and this one is that we are meeting everyday for three weeks, followed by 3 weeks of meeting 3 times a week, followed by once a week for 4+weeks. Each session is 3 hours. It’s pretty amazing when you think about it.

We started with introductions, about 15 of us including doctors, nurses, psychologist and pharmacist. Then one of the doctors read an inspirational passage about fear from a book. I must say… it was good to hear from this particular doctor as when I first started this process years ago (after being diagnosed with FMS), I saw this doctor and he was a complete ASS to me. I remember crying after leaving my appointment with him. He is a convert and now understands chronic pain and the effects much better. It’s good to know folks can change.

After the reading, we did about ten minutes of Qi Gong… all of us and then all the medical folks left and the rest of us did Feldenkrais for about 40 minutes. We did Feldenkrais the last time I went through the Level 2 program, but only for a few minutes. This was interesting, not easy for me, but I definitely see the benefit in it. With more sessions, I know I will be able to relax more. It was difficult for me to relax and get into it. I was also having a hard time paying attention to the instructor, just my mind going crazy. I need to learn how to calm my mind down better.

After Feldenkrais, we had a 45 minute group session about a concept. Yesterday was about the 3 P’s. Planning, Prioritization and Pacing. This was ran by the psychologist but about the input from the group. Group therapy with everyone in the room on the same page… we are all in pain. A room full of people who can all relate to each other’s lives.

After this, everyone went for a group walk for 15 minutes… and then ended the day going around the room with parting comments.

I am optimistic (how often do we say that word?) that I am going to come out of this process as someone who can start living a higher quality life.

I have only had one day, I will start getting ready to go back today in a bit. Getting dressed and leaving the house every day will be a challenge for me since I am usually in the house Monday through Friday. I am also thinking about work a lot, so I need to let that go. This program is all about me and about me making my life more about LIVING than just getting through the day.

I can do this.

I wish you all a great day!

Waiting… and Waiting…

Waiting. Waiting. Waiting. This is what I am doing this week. I was the lucky recipient of the “oscopy” twins, one up and one down… on Tuesday… seems like  a long time ago, yet it was just yesterday (for me, I’m still up as you can see at almost 2am). The waiting before going in for the procedure was not fun. After drinking that yummy liquid, I thought I was doing alright when BAM! Nausea along with a nice little migraine followed by the chills hit me like a mack truck. I wasn’t able to finish all that stuff. It was lights out and pray for sleep. Thankfully when the nurse asked me “So, did you drink all the Gavilyte?”, I promptly answered with “Yes” and there were no issues as a result of my giving up on the strict instructions.The actual procedure was a dream, with IV in my arm and drugs streaming down the line… I was out. I woke up, got dressed and went home… I honestly cannot remember most of that day. All I know is I am thankful that I didn’t wake up during the procedure!

So, now I’m back to waiting. Waiting for the results of my stomach and polyp biopsies. I am going to stick with the assumption that everything is all good to go. Although at the same time I’d like to hear “Well, you have XYZ, which explains all the problems you are having with all the rumbling and tumbling in your tummy as well as the anemia.” I don’t have high expectations that there will be answers, it seems there rarely are… oh, other than “Well it’s part and parcel with Fibromyalgia… or Depression…” On those days, when I walk out of the doctor’s office, I mostly feel deflated and question my wisdom with going to the doctor in the first damn place. This last round has been fruitful, in that I know I have anemia which is a good reason for my exhaustion of late. What I don’t know is where the blood is going or why this damn flare is going on… and on… and ON.

Oh these are fun times, right? I am working as hard as I can at work and still feel like I should be doing better. It’s tough when you know you used to be so … well … good at your job. Yes, I used to be good at my job. I just can’t remember when that was. I believe it was about 3 or 4 years ago. I’m not sure. I know I have had bursts of goodness, but those are definitely few and far between.

ANYWAY! Here I am. Waiting.

Tomorrow’s going to be the day that I get my results back.

I hope.

Stay cool!

Day 30: My Word Tree…

Today’s Prompt: Word Cloud. Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests.

Today is the last day of the WEGO Health Activist Writer’s Month Challenge. I did it! As the final post, I have created this tree in answer to the prompt… enjoy!

Day 8: Best conversation I had this week

I am participating in the Health Activist Writer’s Month Challenge. Please visit WEGO Health’s blog and the WEGO Facebook page to find other writers tackling the same topics—or sign up for the challenge yourself!

 

Rinnnnnnggggg (not really what my phone sounds like since it’s a mobile, but I have no idea how to get that translated here)…

Me: Hello?

Man on phone: Hi this is Dr. X calling, we have a phone appointment scheduled today. How are you doing?

Me: I’m doing okay, how are you?

Dr. X: Well I’m doing good. I understand you had an appt with your primary care physician and she has referred you back to us here at the Pain Clinic. So, it doesn’t sound like you are really doing “okay”.

Me: Well, yeah… I never know what to say when people ask that question, it’s kind of a default answer. I have been in a horrible flare for the past few weeks. I don’t really understand what the trigger was, I can normally attribute it to the weather or an event. This time it’s has come and doesn’t appear to be going away… thus the appt with my dr. Normally I don’t go in or call because I know there’s nothing she can do for me.

Dr. X: Yes, I understand. With your situation, it’s a good thing that we are talking again. I know how hard it is to manage day to day and your right, your primary care dr. is probably at a loss. I spoke to Awesome Nurse (I’ll call her that, because she is) about your case before I called you and she mentioned what the two of you discussed the last time you spoke. We both felt it would be good to talk to you about some of the changes going on here.

Me: Okay.

Dr. X: Since you went through our Pain Program, we have made significant changes. We have a new Psychiatrist here and we have revised the program completely. We have introduced a group support structure and incorporated movement strategies into the program. We have very good results and the success rate so far is pretty high.

Me: This sounds interesting… and the conversation continued for another 15 minutes.

When I first saw this prompt for the Health Activists Writer’s Month Challenge, I was a little wary. More than a little, I was thinking this is one of the days I’m going to miss. No conversation stood out that I wanted to share… no good conversation I should say. My dr.’s appt was pretty disappointing earlier in the week and I’ve been in so much pain I haven’t really been conversing. This call that happened today gave me hope. Dr. X explained this program and how it works, the intake process and really gave me a great feeling. He said he’s seen people that have been in pain for a very long time, people like me he said, that have tried everything and he felt like they had really seen life changing differences after they completed the program.

He said that people on medication and rely on it, people that want to get off their meds, people that don’t want to take meds… basically whatever choices people have made about meds, it doesn’t effect their participation in the program. He told me that they don’t judge or discriminate, at the end of the day their goal is for people to be able to live better lives. A holistic approach, not just to “fix” something, but to change the way we are able to live. Part of the intake process and the program overall is to help determine what each individual needs, whether it’s medication or emotional support or whatever.

Like I said… I have hope and I can feel that sunshine again. I trust these people. They gave me life before. The Kaiser pain program is amazing. If you have one, and you are a member… I really encourage you to get a referral and jump in with both feet. You will be in a pain friendly environment where you will not be judged and most important… you will be BELIEVED.

I’m looking forward to this opportunity. I’d say wish me luck, but I have faith and that trumps luck every time!

Thanks for reading.

Tamiko