Day 24: Health Mascot…

Today’s Prompt: Health Mascot. Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!

My health mascot is definitely my Tani girl. She represents everything that makes me smile. She is happy whatever we do and wherever we go… especially the beach (which is also my favorite place!). Whenever I’m down she snuggles up next to me. When I’m cold she keeps me warm. She always seems to know when I need her most.

She loves the beach as much as I do.

She’s too cool for words… even in her shades!

She brings holiday cheer to everyone… putting up with the costumes I put on her.

It doesn’t matter what the situation is… she brings me joy. I don’t know what I’d do without her.

Day 21: Health Madlib Poem… Captain Barbossa and My Gut

I have had one hell of a week. I have been to the doctor just about every day, yesterday twice. I have had my blood drawn three times and I’m waiting for all these results to help figure out what the heck is going on. I have found out I have iron deficient anemia. Now it’s on for the search for where the blood has gone… is going and where it’s coming from. I gotta say, I am happy that there is a valid, medically tested and confirmed reason for why I am so damn tired and having such a hard time focusing. I never go to the dr. for these things as they have become a way of life for me… this was just a very good reminder to check in every once in awhile. Coincidentally, Adrienne Dellwo, writer for about.com’s Fibro/CFS page posted up this article about anemia and FMS the day I found out. If you haven’t stopped by her site, you are definitely missing a crucial tool in your resource box.

Anemia & Fibromyalgia: How’s Your Iron Level?

It’s funny, the doctors and nurses are amazed at how I am still working and generally still somewhat functioning despite the level of pain and this new found anemia. It’s been kinda nice to hear, considering I have been feeling so lazy and dumb for the past couple months. I don’t mean that in a critical way, it’s just the easiest way to say how I’ve been feeling… and it’s true. In actuality, I haven’t really been completely depressed about this (wierd, right?), sadly I think I just accepted the reality of FMS. Maybe some of the realities of this illness should not be accepted so easily.

Figuring out when to call the doctor and when to carry on is so difficult. We are all so used to leaving the doctor’s office feeling like “that was a complete waste of time” (and I usually have a word that begins with F in that sentence even though I am trying not to use words that start with F…). I think we all start to give up on ever feeling good again. I had definitely given up on even thinking I would feel good about eating again. I always feel, for lack of a better term… yucky. I really want to eat something (because I LOVE food!) and then when I do… I feel like crap after. I was telling my husband, it’s like when Barbossa is telling Ms. Turner in his quarters what it feels like to never really live or die and he explains… “The more we gave ’em away, the more we came to realize the drink would not satisfy, food turned to ash in our mouths, and all the pleasurable company in the world could not slake our lust. We are cursed men, Miss Turner. Compelled by greed, we were, but now we are consumed by it…“, he goes on to say “For too long I’ve been parched of thirst and unable to quench it. Too long I’ve been starving to death and haven’t died. I feel nothing…“. I sometimes wonder if i was on that quest and I took some of those gold coins. Someone please tell me where I put those (as you must know I forgot). I’d like to put them back.

For fun, here are a couple sites to see Barbossa’s quote:

Well, I should get on to what the prompt was for today since I am participating in the Health Activist Writer’s Month Challenge. (Please visit WEGO Health’s blog and the WEGO Facebook page to find other writers tackling the same topics—or sign up for the challenge yourself!)

Today’s Prompt: Health Madlib Poem. Go to : http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you. Feel free to post the Madlib or edit it to make it better.

Well….. I did this. I followed the prompt, went to the website and I gotta say… not impressed. This isn’t the best use of my blog, but I’ve already used my two “get out of post” cards.

This is the poem as it was turned out by the madlib…. like I said… not impressed. I look forward to the next prompt.

mysterious dog’s mysterious dog

ccarefully i have never imagine, loudly beyond
any bed, your fibromyalgia have their funny:
in your most adventurous palm tree are things which endure me,
or which i cannot listen because they are too quietly

your clumsy look somewhere will unovercome me
though i have photograph myself as rainbow,
you pretend always doctor by doctor myself as park sleep
(understanding accidentally, absentmindedly) her beautiful flower

or if your toy be to whisper me, i and
my hammock will escape very painfully, courageously,
as when the banana of this bed gather
the beach irritably everywhere promiseing;

nothing which we are to reach in this kitchen talk
the car of your quirky mom: whose dad
walk me with the sister of its brother,
runing illness and depression with each danceing

(i do not dream what it is about you that wish
and write; only something in me believe
the grandma of your fibromyalgia is strong than all park)
grandpa, not even the caterpillar, has such amazing monkey

– sing & e.e. cummings

Day 20: Miracle Cure… (not really)

Today’s prompt: Miracle Cure. Write a news-style article on a miracle cure. What’s the cure? How do you get the cure?

I thought and thought about this prompt. Just getting past the word “miracle” was difficult for me. I’m sure everyone has tried at least one thing in their lives that they thought would miraculously cure them based on testimony and research… only to be completely disappointed at the actual result.

So, here’s my write up (I felt like I was back in school again writing up this pretend article):

San Jose, CA. A report has come out today from a panel of doctors reporting that they have found a cure for Depression. This panel of doctors from around the world have discovered that by including a specific type of food in the diet, patients have responded successfully and appear to be symptom-free. After experimenting and testing this theory on patients around the world for the last few years, this is no longer theory but fact. We now have a cure for depression.

What is this miracle food you wonder? It is a new type of fruit that scientists have been developing from an array of fruits from different countries over the last decade. This fruit grows in any type of soil and under the best and worst conditions making it easy for anyone to grow once they are made available to the public. The best part about this news is that the cost is almost negligible. People can grow this at home or soon be able to purchase at any grocery store.

This fruit is similar to an apple, has a wonderfully aromatic scent, and a flavor no one has been able to put their finger on.

Once FDA approval has been obtained, the name of the fruit will be released.

Of course the above story is not real… but one day I hope something that does not require a prescription or a big bank account and is natural will be the ultimate cure for depression.

Thanks for visiting today! Have a great pain-free week-end!

Day 19: 5 Dinner Guests…

I am participating in the Health Activist Writer’s Month Challenge. Please visit WEGO Health’s blog and the WEGO Facebook page to find other writers tackling the same topics—or sign up for the challenge yourself!

Today’s Prompt: 5 Dinner Guests. Who are 5 people you’d love to have dinner with (living or deceased) and why?

If I could have dinner with five people, they would definitely be the following:

  1. My Godmother
  2. My Grandmother
  3. My auntie Kei-chan
  4. My auntie Tomo-chan
  5. My mom

These are all the most awesome women, all who are now passed away, except for my mom (Thank God I still have her!). I believe this would bring my mom the most joy to share another meal, more importantly the conversation, joy of being with her family and best friend and oh my goodness… the pure laughter that would result from the things that would be said. I can’t even imagine how cool this would be!

I know with all my heart, during the time we would be together, any thought of pain for both my mom and I would be non-existent. For those few hours, it would be just like the old days when I was the child listening to all the conversation going on around me, taking it all in. Learning and laughing.

What an amazing dinner this would be… good food and the best company ever. Another perfect day in the making.

Day 17: Learned the Hard Way…

What’s a lesson I learned the hard way? Hmmmmmm, which lesson do I choose? There are so many possibilities.

A lesson I keep learning… the hard way… is that exercise makes a difference. Another lesson? That my diet makes a difference. It’s like I know what I am supposed to do, but my brain says otherwise. Take my meds everyday at the same time, manage my stress, manage my time… there are so many things I know I should do. So I guess I haven’t really learned my lesson(s)… yet.

I would have to say the biggest lesson I have learned is the “overdoing it” one. I am much better about stopping when I should, not over committing, holding back when I want to get something done. I realize the consequences of my decision mean I will be out of commission for days on end if I don’t restrain myself.

My perfect day on Sunday, we went to the zoo. Normally I would take my cane, but I knew there was no way I could make it from the car to the entrance without my pain making it so uncomfortable it would start the day off badly. I used a wheelchair. This is letting go of my pride to the infinite degree. I really just had to accept this was the only way I was going to get through the day and have fun. I can tell you, I was simply exhausted at the end of the day. The wheelchair saved me, but it didn’t alleviate the pain or exhaustion. I thought I’d experience less pain, but I didn’t allow it to ruin my day. I also didn’t overdo it. I had my perfect day.

It’s so easy for all of us to overdo it. Overdoing it can mean vacuuming the house or washing the clothes or making dinner. It could mean working a normal 8 hour day. Living within our boundaries is not easy. Trading one activity for another could mean working and not participating at our child’s sporting event. It’s not fair, but these are the decisions we are faced with. We need to feel okay about it or we tear ourselves up for it. I am not a bad mom, a bad wife, a bad employee… I’m not a bad person. I am someone living with a health issue and I’m doing the best I can.

The lesson I learned (and continue to learn everyday…)? Balance. I can say I’m sitting about even, feet dangling off the see-saw. I definitely have my up days … and my down days. I have learned, but the actual daily practice of this balancing act is crazy hard.

What about you?

Thanks for stopping by.

Tamiko

Day 16: Pinboard…

The prompt today is to create a pinboard for my health. I created one just before I joined this writing challenge. I have been posting most of my prompts from this challenge there.

My three favorite prompts so far in the challenge are:

Day 5: Ekphrasis Post… WHAT? Ekphrawhatis? #HAWMC #Fibroymyalgia #Depression

Day 7: TUI… Talking Under the Influence of Pain #fibromyalgia #depression #HAWMC

Day 11: THANK YOU! Remembering my very first post: The F word… Fibromyalgia #HAWMC

Short and sweet today… it’s been a rough one for me. Rough or not, I can’t forget to wish my dad the very best birthday in the world!! Without him, I would never have this ability to communicate.

Take care everyone!

Tamiko