You are responsible for your happiness and your health

I had a breakthrough today… I believe that’s what it’s called. It’s personal so I won’t share it with all of you, but I felt I needed to just put it out there. Why say it at all? It was a big day for me, I wanted to mark the day as a historic moment in time. March 2nd, 2010. Done.

This life is a trip. No matter what happens good or bad, the sun still comes up in the morning and goes down at night… and let’s be honest NOONE wants that to change, right? Drama happens in everyone’s “world”, but do you ever stop and look around? Do you ever really stop and just take a good look around? I, personally, can’t take my life too seriously. I would be a real basket case if I did. I used to take my life too seriously and trust me… ALL I THOUGHT ABOUT WAS TRAGEDY.  (I bet you wish you were my friend in those days!) I was Ms. Negative about everything. I try really hard to think positive about things. I may not get it right all the time, but I do try.

Look around these days… earthquake in Haiti, earthquake in Chile, homeless people everywhere you look, you must know countless people looking for jobs, friends who have lost their spouses/children/parents… these are rough times people!! Why do you think we have chronic pain?? It is not a coincidence!!

You need to look at your life and figure out if there is a link between how you live your life and your pain.

  • Do you hang out with positive or negative people?
  • Do you have a positive or negative outlook on life?
  • Do you believe you will get better?
  • Do you believe you can be happy?

You are responsible for your happiness and your health. You have to make life choices toward happiness and good health. I have to do the same. Trust me, it’s not easy. There are days I prefer to stick my head in the sand and stay in the dark… but those are the days I need my husband to push me to get up and come outside and play.

What I’m trying to say is… your attitude about life plays a big role on how you feel and your pain level. We have so much pain already, anything that will reduce our pain … well … it helps, right?

Thanks for reading! Look forward to your comments… stay cool!

Fibromyalgia and Doing “IT ALL”… What Do You Think?

Okay… here’s the thing. I’m just going to say it. I don’t get how people with chronic pain manage to do “IT ALL”. I am sitting in the kitchen that I made a mess; because I don’t want to sit at the desk that I left a mess; because I don’t want to sit in my bedroom that I left a mess. Honestly, there are not that many rooms left in the house. My son’s room smells like something or God forbid someone died in. My daughter has friends jumping around, hopefully not breaking the furniture in her room, and it is extremely loud in there so I wouldn’t be able to concentrate. My one sanctuary room, “the living room” in a very deep booming voice), I kind of have not allowed myself to go in so I don’t ruin it… you know the room I’m talking about. When you were growing up, it was the room that had the plastic covered furniture in it. The room no one was allowed to actually enjoy themselves in. Only grown ups were allowed in there, and only on special occasions. Sooooooo, when I grow up, I will let myself go in there! Until then, it’s just for special occasions… and I haven’t yet forced the plastic over the furniture… don’t push me, I might just go there! (if I was reading this out loud to you I would say “

Back to my topic… I can’t even stay on topic, much less do “IT ALL”, which of course IS my topic! whew! This is starting to confuse me (which as you know is not too difficult to do…). So! Since the holidays, I have had one hell of a time finding time to

  • tweet,
  • blog,
  • work my full-time+ job,
  • eat right,
  • spend time with my family,
  • exercise/ do my physical therapy,
  • read,
  • research fibro,
  • spend time with God (which should be #1),
  • spend time with family/ friends
  • paper craft

Obviously the must do’s always get done because they have to. Once prioritized, I thought it looked like this:

  1. work

Then I sat here for a while… and I decided I would rearrange things a bit. One priority just sucks… and it’s selfish and stupid, not to mention it’s not much of a life and I refuse to make that my life (did you say that in one breath?)! At one point in my life, that is actually how I lived… yes, I know, it is very sad, but true. I refuse to let that be the case now!

So, here’s what I will work on… AGAIN (because I keep forgetting and hopefully this time I will pay attention!): IN THIS ORDER…

  1. God
  2. My health
  3. My family
  4. My job
  5. My papercrafting

In between those things, I will tweet and blog. I will do my best and I will accept I can’t do it all. If I’m successful, I will get less and less of those looks from my husband where he’s shaking his head like I’m crazy because I’ve just taken on the world. If I’m successful… I. Will. Be. Content. Because I am content, I will have less flare ups… you see? I do get “IT”, I just have to accept that I am not Wonder Woman and I can’t do “IT ALL”. Those are two totally different things. But seriously, if I was Wonder Woman… I would totally dig that plane she had.

What do you think?

Thanks for reading. Stay cool!

Working to Stay Positive When Life Gets In the Way

I cannot believe I have not posted a blog since January 1. That is just unacceptable! hmmm…. what has happened in the last month? Let’s see…. Well? The company I have worked for, for 20+ years was purchased (finally!) and I am now changing over to this new company. I am starting a new job in a of couple weeks. Trust me, there has been a lot of stress working up to these days. That’s one MAJOR change. What else? Oh yeah, I started my Level II Pain Program at Kaiser… that’s another MAJOR change. That alone is a whole other blog! What else? Oh, I went to the Craft and Hobby Association (CHA) Show  in Anaheim for five days. You heard me right… FIVE DAYS! What else did I do in this past month… I also worked on two memorial collages and oh yeah I’m still working full-time and dealing with this wonderful condition we love to call FMS. So, I guess I will give myself a break now that I see all that in writing, and say January was a pretty busy month, and I’ll do better in February to blog more.

I have been meaning to tell all of you how much joy scrapbooking has brought me in the past month. Even if I haven’t made pages for myself, just working with the paper and being around friends has ensured I don’t fall into that January funk so many of us hit after the holidays and in the foul weather. This is usually a very difficult month for me. I started with working on a memorial collage. It was very sad as a young girl had passed away that the collage was for. I am finding that although the passing is extremely said, I have found that these scrapbook albums are so treasured after they are viewed at the memorial service on the collage boards, it is a true gift to be able to design the pages and put the pictures and paper together to create the life stories people will tell as they remember their loved one. I feel blessed to do this for people. This young girl Chloe was only four years-old when she passed and in her young life, looking at her pictures was not easy as we made the pages – yet I knew when her family saw the collage at the service and received the album afterward… they would treasure it forever. Truly a gift that I felt honored to be a part of giving.

Attending CHA right after finishing that collage was a refreshing change from my day to day job and nice to get away from home with the girls. We drove down to southern California and spent those days cruising the booths, looking at and testing the new products, we took some classes and a couple of us won the Making Memories Slice die cut machine! I can tell you… I was dead by the end of day 1, by day 2 I opted out of my first class, by day 3 I had a burst of energy until later that evening. Day 4 was a very painful day and Day 5 was a good time to start on our way home. It was a great trip! I did pace myself okay, but it was hard and very frustrating at times. I missed a lot because I just could not get around or had no energy left. I kept a warming pad in the bed and I always went to sleep with my “deep sleep” app on my headphones so I would go to sleep without distraction. In addition, lots of breathing exercises and I walked with my cane. I understand, there’s always next year! CHA L.A…. Here we come!!

Back home I worked on another memorial collage, which was very relaxing hanging with my friends and just putting my heart into the pages. This time it was for an older woman who had certainly changed the world because she was a teacher in so many ways… of young children in the classroom, of people in her kitchen with cooking classes, of people in her determination to get the word out about GIST, of young children on trips to Washington DC… she traveled the world… you could see through the eyes of the pictures what a life she had. Again a blessing to be able to help in this gift to her family.

My work life is changing and I am both scared and excited for this change. I know that it’s time, just need to get my heard around it a bit more. Is this the change that God wants for me? So many questions in my head right now. There’s so much stress at work with people confused and unsure of what is happening to them. I just want to fix everything and help people, but in most cases, it’s just a matter of patiently waiting things out. Patience and ME have never really been the best of friends… When I get stressed I try to do some breathing exercises to just get my head focused. This helps to calm myself so I don’t increase my pain levels.

As you can see, doesn’t matter whether my body is working or not … the world continues to move on and I need to keep moving with it! Working to stay positive and finding things that are relaxing and help to keep the stress down are what work to keep my pain levels down. This is what is important to me.

Just thought I’d share some of my activities with you… I hope you are all having pain free days!

Thank you for reading! Stay Cool!!

Don’t let chronic pain steal your joy… My challenge to you: Enjoy life in 2010

I have started and stopped this blog at least fifteen times now. I have deleted four or five blogs completely, for this blog you are reading now I have erased sentences, paragraphs and entire pages before getting to the point of actually posting this one. I’m not sure what my problem is, I just have not been feeling the writing mojo in 2010… until now.

I cannot believe it is 2010… two-thousand-ten or twenty-ten or two-thousand AND ten or however the heck you want to say it! First, let’s get the awkwardness out of the way… YES I changed my look on my blog! Whew! I am one of those people that has to change things. I move the furniture (in the middle of the night I might add), I want to change the paint colors on the walls, I change my desk around, I always want something different! here again, easily distracted… now you know why! I love the feel of “brand new”. I thought, “new year” => “new look” to my blog. now that that is out of the way! Oh and before I forget… I also think I better start using my capital letters the right way. I am going to work for a “new” company soon, so I better think of it as a “new” job. I should start getting used to typing better in case I really really have to get a “NEW” job if you get my drift!!

So! There is a lot of newness going on in 2010. To be honest with you, and I feel I can be honest since you are all my virtual friends and family, I don’t like change. I like tradition. I like “brand new” added to tradition. I. don’t. like. change. Funny, I always thought I liked change, but now I realize I like “brand new” which is not the same thing as “change”. I will say this. I adapt well and I can be pretty darn flexible. I just fear the unknown. I said it. I don’t like change. I can move on now. It will take awhile to accept that, but at least I know.

I am still working on what I want my goals to be for 2010. The last couple years, in fact, the last three to five years have been tough ones for me. I have lost many loved ones and my health has not been great (understatement). I know one of the areas I really want to work on is just living above all the sadness and really getting into life and making 2010 all about living life at the fullest! I haven’t gardened in years, I haven’t done things just to have fun in a long time. I want to laugh and have fun and remember those people that have passed on in a fun/ loving way and be done being sad. I want to enjoy scrapbooking again. I want to enjoy working and enjoy living. I want to learn how to “LIVE” again. I don’t want fibromyalgia to take over my life. I don’t want chronic depression or any other medical condition to rule how I live. I understand this will not be easy, but I will take one day at a time and know that there will be days when things won’t go so good and on those days… doing something fun will be the most important part of my day!!

It’s interesting, in my Level II Chronic Pain program this past week, one of the homework assignments we received was to do something we enjoy every day… one of the people in the class said “everyday?” as she read the list that was provided as an example… we just seem to forget what it’s like to enjoy life when we are in pain.

Can you do something everyday that you enjoy? It can be something as simple as having coffee in the morning while you read the morning paper or playing games on facebook or something that requires more energy like going for a walk or seeing a movie… whatever you want! This is all about Y-O-U!

I have my homework that I’d like to make a habit instead of just homework… that’s my challenge to you!

Thanks for reading. Stay cool!

whew! i’m still standing. or rather sitting. or am i passed out on the floor?? all i know is… i made it through the holidays and now… i’m getting ready for 2010!!

merry christmas!! i’m still standing. or rather sitting. or am i passed out on the floor? all i know is… i made it through!!

what a whirlwind holiday season this has been! most days i had no idea if i was coming or going. i was foggy brain multi-tasking which, trust me, was the scariest thing ever. i mean it. think of this… my family room had about 15 projects going on, you could not see the floor, the table tops, the chairs, the couches, it was absolute chaos in there… but for me? i was workin’ it. i had three 6-foot tables in that room, i swear when i wasn’t in there, there were little project angels helping me… (a girl can dream, right?) i have to really give it to my husband, he let me do my thang (that’s right THANG). he generally (and by generally i really mean always, can’t stand it, has no patience for it) hates clutter and if that room was not the ultimate, extreme definition of clutter, i don’t know what is… but he just soldiered on each day, for weeks, and let me work. i’m pretty sure he knew i would have lost my mind if he said something, but that, my friends, is support.

i gotta tell you, i had a lot going on before that big guy was comin’ down my chimney… i had:

  • eight 12×12 scrapbook calendars to make (only 3 of which were the same) so i was designing scrapbook pages for hours!,
  • 28 kids to buy for (thank goodness for amazon.com!!) – let me tell you those lightning deals on amazon saved my “you know what”,
  • one 12×12 album to scan and copy to create two smaller 8×8 albums (seriously can santa bring me a 12×12 scanner next year?? scanning a page 4 times is so not fun!! can you say 26 x 4? and honestly my husband did all the scanning, what a guy!),
  • two desk calendars (thankfully there’s snapfish where i went to create online) and
  • two poster collage calendars (again i love snapfish!)
  • christmas cards (last minute decision… snap! fish!) and
  • i helped my daughter make eight custom designed tshirts (what was i thinking…. i was thinking in October… that she needed to start, which is what i told her… told her in November… told her December 1… 2… 3… you get what i’m sayin’… her beautiful brother helped me in the middle of the night to get these and the calendars done)
  • in addition to her one 12×12 scrapbook calendar… (again, why do i encourage the start of all these projects? i love the feeling of frustration and stress all at the same time… it’s such a yummy feeling! and honestly (again) i didn’t really do anything but encourage/motivate/yell/yell/yell at her to get it done) but… her creations were awesome! i have to say it again… totally awesome!!!

and all this in the span of the three weeks before santa arrives… 80% of it the 5 days prior to… oh yeah, totally forgot…i also had:

  • the cookies to bake, which the kids did (thank goodness for auntie cheryl who faithfully comes every year to lead the troops while i quality check the end result)
  • the tree to decorate, which i did in the middle of the night one night after i just couldn’t take it anymore (the tree had been put up and the lights were on it, what was my excuse? don’t get me started… but i had to put my mom’s handmade ornaments on it.)
  • i scrapbooked an album as a birthday gift for a family member (i was really happy to have done this, this one made me feel really good)
  • i worked a little bit up until christmas eve, which i had meant to take off completely… because i was needed to do some things. it took more time than expected, but it was worth it.

moving on… i’m getting ready for 2010!!

now that christmas is over it’s that time of the year where everyone starts to make resolutions for the coming year and reviews the goals they did or did not achieve for the prior year. we do this as a family in my house. we set aside a day and scrapbook a page and each list our “10 most memorable moments” and “10 goals for the year” some of the goals are the same for each year, some are different – it’s not a time to be judged. my son is very good about listing smart achievable goals, he knows how to create achievable goals. i am going to learn from him this time. what a novel idea… an achievable goal! this is such a great skill he has at such a young age… he is very wise for a 17-year old. tomorrow is the day we will work on our lists and scrapbook together as a family. i hope for a drama-free day… i plan to just work at my desk with the family with tani by my side and get into my groove with positivity and God on my side… because that is how i plan to start 2010!

this will be a year of change for my family…

  • my son will graduate from high school. we will find out what his next path in life will be in the spring, i am going to be brave about this, but i already miss him. my best friend’s son is leaving for the air force in february… i miss him already even though i never see him as they live a state away. he was the first baby between the two of us bff’s so i feel as though he is leaving me too.
  • the company i have worked my entire adult life for, the last 24 years will be acquired by another company come the end of January. this will be a change like no other for me…
  • i start my chronic pain program in january, this is supposed to change everything for me as far as my pain. the pain team says they have seen people leave this program, literally, with renewed lives. i’m excited to see how i am doing as i progress through the program.

i am thinking about my goals for the coming year, i know all of you are as well. i am wishing all of you less pain in 2010 than you had in 2009 and continued sharing and support. we hold each other up in the good times and the bad and together we will continue to make each other stronger.

thank you so much for making me a stronger and better person despite having fibromyalgia, this community of fibromites/ chronic pain people seriously ROCK! nothing can hold us down!

thank you for reading and stay cool!

screw fibromyalgia and celebrate the best things in life!! my family is AWESOME!!!

i drove for the second time in 6 months today… coincidentally, it was also the day my boss came in to town. i picked him up from the airport, after a day of meetings and meals… all i can say is by dinner i was walking with my cane. after dinner walking back to the car my legs froze up and the pain was quickly moving up my arms to take a rest on the left side of my chest. nice. NOT! soooo…. i suck it up, drive to the hotel and drop off my boss… promptly ask my lovely friend to drive and i jump into the passenger seat. no tears today folks!

yeah well, i was not happy. in fact, i was really going into quite the mood. i had to call my husband and tell him we were on the way home. he needed to get in the car and drive my girlfriend home because i was in over my head with the whole “thought i was independent” thing. (please bust out the violins and start playing now)

it all gets worse… while we are driving i find out my baby girl (she’s eleven) is home alone for the first time at night while we are out on this driving escapade. an escapade that we wouldn’t have to be on if i would just get my shit together and win the lottery, so i could have a flippin driver instead of having to “phone a friend” every time i need to go somewhere. (the sarcasm is really heavy at this point… argh!)

i get home and i’m not happy (if you haven’t figured that out by now)… but as i walk up to the back door i see a red ribbon on the door… a little smile on my face. what the…. i go in the house and my girl is in the kitchen and gives me a hug, my smile is growing. i go in the house and walk further and i hear christmas music… and i’m wondering what is going on… and i go check out where the music is coming from… and this is what i see:

my family had gone out while i was working, picked the tree, brought it into the house, put it in the stand and put the lights on!!!

BEST DAY EVER!!!!!!! BEST FAMILY EVER!!!!!!!

need i say more??? on days like this, screw fibromyalgia and celebrate the best things in life!! my family is AWESOME!!!

thanks for reading! stay cool!

happy holidays!