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How Do You Recover?

How do you start your day? If it starts out good or bad, does that determine how the rest of your day will go? Do you have the ability to turn your bad day around if and when it turns sour?

I tell you… with chronic depression, it’s like climbing up Mt. Everest carrying a 100 lbs. of cement on my back to turn a bad day — to good. Some days it just doesn’t work out. Some days the depression just hangs around like the cloud of dirt around Pigpen. Some days I am able to turn it around.

Yes, I take medication. I take medication to help me manage my pain, my depression and to help me sleep. I remember what it was like without medication. I know I don’t want to go back to those days. I hate putting these pills into my body. Every time I have to refill my pill boxes, I hate it. It cause me to go down a bit, but I have to remember that in the end it helps me. I sleep better, It helps me walk, work, spend time with my family… it helps me be human.

I worked about 70 hours this past week. I had a colleague tell me on my fourth work day at our business dinner, when I finally gave in and used my cane, that I didn’t need to use my cane, that I had walked fine all day without it. Nice. It still kills me to have to use a cane, and it’s always nice to get comments like that on top of my own pride. By Friday I could barely stand up. A few hours into the day I just lost it and during the meeting started to tear up. Really nice. Nothing like being in so much pain and so exhausted you just can’t do anything but cry… while at work with your entire management team.

How do you recover on these days? I’m not sure I did on those days. Exhaustion is difficult to recover from without just laying down and going to sleep. It’s Sunday now and I have spent the last 48 hours since coming home from work on Friday basically in a complete fog. I have either been asleep or laying down only to get up to go watch my daughter’s soccer game and to take her to the store. To go watch her game was so fucking painful, I really had a hard time even watching. So five days of work, 2 days of sleep. Normally tomorrow I’d be going back to work, thankfully I am on spring break with the kids. This has been my schedule for the last few months.

So… again… how do you recover on these days?

  • You pray
  • You rest
  • You give yourself a break
  • You relax and take care of yourself
  • You smile
  • You laugh
  • You remember it’s just one minute, one hour, one day… you don’t look past right now

That’s what I need to do.

Take care of you.

Thank you for stopping by… please share with me how you recover.

Stay cool.

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Turn Up the Music!

I can remember when I was a teenager blasting music as loud as I could to tune the world out. It worked then and it works now. If I turn the music up to just the right decibel I swear it makes everything in the world seem juuussstttt fine. I remember waiting until my parents would leave the house and turning the stereo up REALLY loud, closing my eyes and just laying on the floor or writing in my journal or chillaxin’…

These days I have to remember, I’m the parent now. I’m the one who’s supposed to be saying “TURN THAT MUSIC DOWN!!!”. Sometimes, like right now, I want to turn the music up so loud the roads shake and the cars jump up and down. I want this damn pain to go away. I am so very tired. I am so frustrated. This pain makes everything so much harder. I hate that people feel bad for me. I never know what to say when my friends ask how I’m doing… I mean, I know I’m not doing fine, but I don’t want to sound like Wendy Whiner so I say “I’m alright”.  Sometimes I just want to say “I feel like shit, I feel like I just got a ‘beat in’ initiation into a gang… the fibro gang. What a fucked up gang that would be. I feel like I’m black and blue all over. I feel like my bones are broken. You can’t see any of this on the outside. I can feel it though. This fibro shit is crazy. I gotta tell you… you gotta have faith in your God to get through this shit. Excuse my language. I’m a little out of control tonight. Just feel the need to vent a little.

It’s difficult to keep all the things in life balanced and working. Life. Marriage. Work. Family. Personal. Health. Throw these things up in the air… which one do you catch first and which ones get dropped? I tell you, I roll out of bed in the morning and start working and I probably work a good 10-12 hours a day these days. I am actually pretty darn focused. Would I actually “catch” work though or would it fall slowly to the floor… interesting question. Scary proposition. Is it possible to catch all of them? It is impossible to multi-task, so something has to give. One can only focus on one thing at a time. Given there’s only 24 hours in a day (now you understand why most of my posts go out after midnight!) if 10-12 are spent working, 5-6 are sleeping, there’s roughly 6 hours left to focus on everything else. Hmmmmmmm. I better take a look at my Maintenance Plan I came up with from my Level II Pain class. I definitely have a problem of “pacing” myself. I can’t seem to work just a “little” bit.

I think I better turn up the music and think about this for a while…

Thank you so much for reading and please leave me a note. I love to hear from you!

Stay cool!

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Nothing like a little ADHD to go with your morning coffee!

I don’t have enough change in my life so once again I decided to change the theme of my blog. There aren’t a whole lot of WordPress themes to choose from, which is probably a good thing for me since I like to change these types of things,  I am still obsessing about the look/feel of this blog. I am crazy woman. I am the person that decides to move the furniture… RIGHT NOW. I am the person who decides that I want to be organized and need a new planner… RIGHT NOW. I need to get organized, therefore, I need to figure out a new file system, which requires new files, which requires a trip to the store…  I need to find a way to track my actions, so I need a new binder or a new planner or a new system or a new spiral notebook or a new ARGHHHHHHHHHHHHHHHH!!!!!!!!!!! WAKE ME UP OUT OF THIS CRAZY ASS NIGHTMARE!!!!!!! MAKE IT STOP!!!!!! Yes indeedy, I have ADHD… I have told you this before. Nothing like a little ADHD to go with your morning coffee. Or how about a little ADHD to go with your morning review of actions… it goes a little something like this:

Me…. reading email, drinking coffee… getting my brain engaged and ready for the day.

My ADHD: “hmmmm so much to do, how are you going to figure out how to prioritize all this stuff… I mean where do you even start?  You should start by prioritizing! You should figure out where to start… You can’t start until you prioritize. You have to prioritize before you start!”

Me: “Don’t do it.”

My ADHD:  “What do you mean don’t do it! You KNOW if you prioritize you’ll be organized.”

Me: “Don’t do it. IT’s A TRAP!”

My ADHD: “Puh-lease. A trap? I wouldn’t do that to you. I am here to help. WE are a TEAM. You need to prioritize. How are you going to prioritize?”

Me:  “Shit how am I going to prioritize? I gotta figure out how I’m going to prioritize! I gotta get a system.”

My ADHD: (whispers) “WINNER!”

Me an hour later…  “SHIT! SHIT! SHIT! I did it again!!!! Oh man I gotta stop getting distracted and focus.”

I have a system for capturing my actions. I just have to keep using it and getting off-track and letting myself get  distracted. It’s just another way of bringing me down and creating pain.

Tonight changing the theme on my blog was a nice distraction after a very long and painful day. My work has been very challenging since transitioning to my new job. It’s difficult to work the long hours and manage the pain.  So after a long day, the time I took to look at the themes and find and edit one of my photos for the header and put a new picture up of Tani… well, it was worth it.

This is the thing… if I can do one pleasurable activity a day, my depression should stay manageable. That’s the hope anyway. I think it’s working for the most part. I have learned this in my pain class. If I can manage the depression, it’s just one more way of helping to manage my pain. Once again, there’s always a connection.

I can manage through the pain. For me, this is my life. In other words, if I accept this is my life, then I will continue to LIVE. I won’t let the pain take me away from living. If I wait until I feel good and there’s no pain to do anything… I may never be able to leave my house! It’s easier said than done… but we all work on this every day, right?

So this post is kind of all over the place, but sometimes it’s just like that! I can’t help how my brain works. I mean you just get to read this… I’m livin’ it 24/7! :) I started writing and I honestly thought I was going to write about something completely different and ended up, well… here.

I hope you enjoyed it. Thanks for reading! I hope you leave a comment, I really appreciate hearing from you!

Stay super cool!

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You are responsible for your happiness and your health

I had a breakthrough today… I believe that’s what it’s called. It’s personal so I won’t share it with all of you, but I felt I needed to just put it out there. Why say it at all? It was a big day for me, I wanted to mark the day as a historic moment in time. March 2nd, 2010. Done.

This life is a trip. No matter what happens good or bad, the sun still comes up in the morning and goes down at night… and let’s be honest NOONE wants that to change, right? Drama happens in everyone’s “world”, but do you ever stop and look around? Do you ever really stop and just take a good look around? I, personally, can’t take my life too seriously. I would be a real basket case if I did. I used to take my life too seriously and trust me… ALL I THOUGHT ABOUT WAS TRAGEDY.  (I bet you wish you were my friend in those days!) I was Ms. Negative about everything. I try really hard to think positive about things. I may not get it right all the time, but I do try.

Look around these days… earthquake in Haiti, earthquake in Chile, homeless people everywhere you look, you must know countless people looking for jobs, friends who have lost their spouses/children/parents… these are rough times people!! Why do you think we have chronic pain?? It is not a coincidence!!

You need to look at your life and figure out if there is a link between how you live your life and your pain.

  • Do you hang out with positive or negative people?
  • Do you have a positive or negative outlook on life?
  • Do you believe you will get better?
  • Do you believe you can be happy?

You are responsible for your happiness and your health. You have to make life choices toward happiness and good health. I have to do the same. Trust me, it’s not easy. There are days I prefer to stick my head in the sand and stay in the dark… but those are the days I need my husband to push me to get up and come outside and play.

What I’m trying to say is… your attitude about life plays a big role on how you feel and your pain level. We have so much pain already, anything that will reduce our pain … well … it helps, right?

Thanks for reading! Look forward to your comments… stay cool!

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Fibromyalgia and Doing “IT ALL”… What Do You Think?

Okay… here’s the thing. I’m just going to say it. I don’t get how people with chronic pain manage to do “IT ALL”. I am sitting in the kitchen that I made a mess; because I don’t want to sit at the desk that I left a mess; because I don’t want to sit in my bedroom that I left a mess. Honestly, there are not that many rooms left in the house. My son’s room smells like something or God forbid someone died in. My daughter has friends jumping around, hopefully not breaking the furniture in her room, and it is extremely loud in there so I wouldn’t be able to concentrate. My one sanctuary room, “the living room” in a very deep booming voice), I kind of have not allowed myself to go in so I don’t ruin it… you know the room I’m talking about. When you were growing up, it was the room that had the plastic covered furniture in it. The room no one was allowed to actually enjoy themselves in. Only grown ups were allowed in there, and only on special occasions. Sooooooo, when I grow up, I will let myself go in there! Until then, it’s just for special occasions… and I haven’t yet forced the plastic over the furniture… don’t push me, I might just go there! (if I was reading this out loud to you I would say “

Back to my topic… I can’t even stay on topic, much less do “IT ALL”, which of course IS my topic! whew! This is starting to confuse me (which as you know is not too difficult to do…). So! Since the holidays, I have had one hell of a time finding time to

  • tweet,
  • blog,
  • work my full-time+ job,
  • eat right,
  • spend time with my family,
  • exercise/ do my physical therapy,
  • read,
  • research fibro,
  • spend time with God (which should be #1),
  • spend time with family/ friends
  • paper craft

Obviously the must do’s always get done because they have to. Once prioritized, I thought it looked like this:

  1. work

Then I sat here for a while… and I decided I would rearrange things a bit. One priority just sucks… and it’s selfish and stupid, not to mention it’s not much of a life and I refuse to make that my life (did you say that in one breath?)! At one point in my life, that is actually how I lived… yes, I know, it is very sad, but true. I refuse to let that be the case now!

So, here’s what I will work on… AGAIN (because I keep forgetting and hopefully this time I will pay attention!): IN THIS ORDER…

  1. God
  2. My health
  3. My family
  4. My job
  5. My papercrafting

In between those things, I will tweet and blog. I will do my best and I will accept I can’t do it all. If I’m successful, I will get less and less of those looks from my husband where he’s shaking his head like I’m crazy because I’ve just taken on the world. If I’m successful… I. Will. Be. Content. Because I am content, I will have less flare ups… you see? I do get “IT”, I just have to accept that I am not Wonder Woman and I can’t do “IT ALL”. Those are two totally different things. But seriously, if I was Wonder Woman… I would totally dig that plane she had.

What do you think?

Thanks for reading. Stay cool!

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Working to Stay Positive When Life Gets In the Way

I cannot believe I have not posted a blog since January 1. That is just unacceptable! hmmm…. what has happened in the last month? Let’s see…. Well? The company I have worked for, for 20+ years was purchased (finally!) and I am now changing over to this new company. I am starting a new job in a of couple weeks. Trust me, there has been a lot of stress working up to these days. That’s one MAJOR change. What else? Oh yeah, I started my Level II Pain Program at Kaiser… that’s another MAJOR change. That alone is a whole other blog! What else? Oh, I went to the Craft and Hobby Association (CHA) Show  in Anaheim for five days. You heard me right… FIVE DAYS! What else did I do in this past month… I also worked on two memorial collages and oh yeah I’m still working full-time and dealing with this wonderful condition we love to call FMS. So, I guess I will give myself a break now that I see all that in writing, and say January was a pretty busy month, and I’ll do better in February to blog more.

I have been meaning to tell all of you how much joy scrapbooking has brought me in the past month. Even if I haven’t made pages for myself, just working with the paper and being around friends has ensured I don’t fall into that January funk so many of us hit after the holidays and in the foul weather. This is usually a very difficult month for me. I started with working on a memorial collage. It was very sad as a young girl had passed away that the collage was for. I am finding that although the passing is extremely said, I have found that these scrapbook albums are so treasured after they are viewed at the memorial service on the collage boards, it is a true gift to be able to design the pages and put the pictures and paper together to create the life stories people will tell as they remember their loved one. I feel blessed to do this for people. This young girl Chloe was only four years-old when she passed and in her young life, looking at her pictures was not easy as we made the pages – yet I knew when her family saw the collage at the service and received the album afterward… they would treasure it forever. Truly a gift that I felt honored to be a part of giving.

Attending CHA right after finishing that collage was a refreshing change from my day to day job and nice to get away from home with the girls. We drove down to southern California and spent those days cruising the booths, looking at and testing the new products, we took some classes and a couple of us won the Making Memories Slice die cut machine! I can tell you… I was dead by the end of day 1, by day 2 I opted out of my first class, by day 3 I had a burst of energy until later that evening. Day 4 was a very painful day and Day 5 was a good time to start on our way home. It was a great trip! I did pace myself okay, but it was hard and very frustrating at times. I missed a lot because I just could not get around or had no energy left. I kept a warming pad in the bed and I always went to sleep with my “deep sleep” app on my headphones so I would go to sleep without distraction. In addition, lots of breathing exercises and I walked with my cane. I understand, there’s always next year! CHA L.A…. Here we come!!

Back home I worked on another memorial collage, which was very relaxing hanging with my friends and just putting my heart into the pages. This time it was for an older woman who had certainly changed the world because she was a teacher in so many ways… of young children in the classroom, of people in her kitchen with cooking classes, of people in her determination to get the word out about GIST, of young children on trips to Washington DC… she traveled the world… you could see through the eyes of the pictures what a life she had. Again a blessing to be able to help in this gift to her family.

My work life is changing and I am both scared and excited for this change. I know that it’s time, just need to get my heard around it a bit more. Is this the change that God wants for me? So many questions in my head right now. There’s so much stress at work with people confused and unsure of what is happening to them. I just want to fix everything and help people, but in most cases, it’s just a matter of patiently waiting things out. Patience and ME have never really been the best of friends… When I get stressed I try to do some breathing exercises to just get my head focused. This helps to calm myself so I don’t increase my pain levels.

As you can see, doesn’t matter whether my body is working or not … the world continues to move on and I need to keep moving with it! Working to stay positive and finding things that are relaxing and help to keep the stress down are what work to keep my pain levels down. This is what is important to me.

Just thought I’d share some of my activities with you… I hope you are all having pain free days!

Thank you for reading! Stay Cool!!