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Let Go and Let God… Be Blessed!

4:44am… this is the time i woke up this morning. Every time I sit down to write I feel like I start with the mindset of how crazy life is… or how much of a roller coaster I feel like I’m on with the pain and emotion. 4:44am… for the last few weeks I keep waking up between 3 and 5 in the morning. Most days I force myself to stay in bed. I read or just lay there and eventually I doze off for another hour. Today I decided I’d go downstairs and check my blog.

It’s such a blessing to me to see how many folks visit my blog and to those of you that take the time to share your thoughts, I say a ginormous (I love that word)… THANK YOU! I still can’t get over the fact that over 35,000 people have stopped by. This is definitely one of the life accomplishments I am most proud of. Quietly proud as I don’t really talk about my blog. I have been asked many times for interviews… I’m more than happy to contribute via email or writing up something for a specific purpose. The times that I am asked for interviews over the phone or video… I feel very honored, I just can’t bring myself to do it. This blog is so personal to me, it’s like my private diary… for many years I wrote anonymously. The thought of talking out loud about it completely freaks me out. For the most part I only share what I’m going through with all of you. I trust that you all know what I’m talking about, what I share is nothing surprising or new… it’s meant to be validation that we are are not alone in our pain.

IMG_0041These last few months have been … well, they’ve been painful in so many ways. We lost an amazing, AMAZING woman much too soon in life. She taught me so many things over the years. This loss has been so very painful. It’s not as if you can put a number to the pain one feels when losing family or friends. Without Jennifer and her daughter, my best friend, I would never have accepted God into my life. I would have never known what it means to be a gracious host or how to make a table look bountiful and beautiful. Jennifer gave me tips on everything from simply how to make my hair look shiny, how to cut vegetables, how to handle itchy skin (Sarna lotion does wonders) to the most complex things like how to raise children and how to read the bible and Believe. It was an honor to be by her side the last few weeks of her life. She died with dignity and she showed me yet another lesson… to the end she fought to be independent. She had a strength in her spirit that even in her last days she wanted everyone to know that God is the final answer, not doctors. Only God knows the path and timing. Let go and let God. A very strong message and one that so many of us forget. Thank you for that and so much more Jennifer. There are hundreds of lives that you touched, many of them children that you helped to raise and mold into the wonderful human beings that they are today. What a treasure.

Also, these painful times bring out the best and worst in people. Thankfully I have the most giving people in my life. When in need, I know I can count on these women to lend a helping hand. My way of healing is always to stay busy and give in some kind of way. Friends just doesn’t seem enough of a word… my family of friends have come together countless times now to put together memory boards. It is during these times I am able to quietly grieve and creatively pull together a lifetime of memories through pictures and scrapbook pages to share. Working alongside these beautiful souls makes my days so much easier. There is no way to ever thank these ladies enough for the help, the meals, the friendship. To know what I’m going through… and with very limited communication… these ladies just say “What can I do to help?” and then they show up at my door. It’s amazing. They are amazing.

There have been many sad and challenging events in the past weeks. Some I have handled well, others not so well. But I have done my best and that’s all I can hope for. I can see the world changing before me and I am really trying to move with the changes. I am not that small child who can lift my hand to my mom and dad for help. It’s my turn to help them… or at least I feel like it should be my time to help them… although let’s be honest, at my age I do still turn to them for guidance and support. And in their moment of need… like a grease fire in their kitchen. Instead of asking me for help, they are telling me to focus on grieving and helping my friend and not worry about them. I can only hope that my husband and I can be half the parents mine have been to us. If we are supposed to make our children better, my parents have definitely done an awesome job with teaching my husband and me… and our children… and those people that have taken advantage of their life experiences and wisdom. So when I lift my hand to my mom and dad, although I’m not that small child… I do still and will always look up to them.

IMG_1795There are days when I want to just curl up in the fetal position and get in bed, pull the covers over my head and close my eyes. But I have to face the challenges and accept that we are getting older, we are all getting older. Age brings the knowledge that life is precious, tomorrow is not promised so we need to try to live each day as if it is our last. Don’t have regrets, focus on what is most important. What is most important to you? For me, it is my family and friends. My goddaughter’s senior night, taking pictures of my daughter and her friends before the homecoming dance, spending those precious moments with my son just talking… spending the day with friends and family in the city. Going to quilt festivals and crafting. And yes, even taking time for myself to relax in front of the TV and catch up on my General Hospital (stuff is about to get real with Jake/Jason!).

It always comes back to this for me… count your blessings. Okay don’t count them, you don’t want to focus on numbers. BE blessed. Just be blessed. Let yourself enjoy life and focus on the good and not the bad. You will have pain of all sorts, but do your best to overcome it and spend your days feeling the best you possibly can. Laugh as much as you can, I hear it’s the best medicine. :)

Have an awesome day!

Tamiko

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How Honest Are You?

… vent, vent vent… complain, complain, complain… this is how i feel. I feel like everyday I say the same damn thing. It goes something like this…

girl-150102_640“I am not feeling well”

“I am exhausted”

“I am in a lot of pain”

“That food was so good!” … and an hour later… “That food made me really sick”

“I don’t have the energy for that”

“My legs aren’t working” … “My hands are killing me” … “I have a migraine” … ” …

I can go on and on and literally ON! I know a lot of you folks out there feel like every time you describe to your family or those closest to you how you are feeling … it’s like a broken record. Should we lie? If I don’t tell the truth people assume that I’m feeling perfectly fine and then expectations change. The truth of the matter is, just as quickly as I forget what pain feels like, others forget what me in pain looks like. And honestly… be super-duper honest… is there ever a moment in the day when you don’t feel any pain? For me, the answer is an adamant “NO!” (I’m really not shouting at you… just making a point). So if I go with my baseline pain level and call that “fine” and then just speak to my worse than baseline symptoms, is that better? And better for who? Me? My family?

What prompted all this? Well… I’m not sure. I think it’s because I have been in a flare for months now. I’m not sure how long because at the beginning of this calendar year I, for no rhyme or reason, stopped using my calendar. I had a calendar last year that I wrote all my health stuff in… this year I just haven’t had the energy. I’m not even sure it’s a lack of energy thing as much as it is I got tired of thinking about everything. I’ll be honest… I’m kind of a mess right now. But, as I was saying, I feel like I’ve been flaring for months. I don’t recall being in a flare for this long in years. It’s just not calming down.

So, is it a burden for my family and friends to carry if I am honest about how I am feeling or is it a burden for me to keep the truth to myself? What’s the balance and where do you draw the line? I’ll tell you what. I’m tired. I’m tired of feeling like shit. I’m tired of being depressed. I’m tired of never being able to say… “I feel GREAT!”. I’m just flippin’ tired.

And now that I have vented and complained what the hell am I going to do about it? Ummmmmmmmmmmmmmm, can this be one of those days where I just vent and complain? Do we get those days? I think if you talked to my husband he’d tell you I definitely have those days… but that’s not what I want to do with you folks out there who have chosen to follow my blog. We all have these shitty days, but to just vent and complain brings everyone down including ourselves. How do you get out of the pit of pain and depression? I believe you have to be kind to yourself. Acknowledge that you will have bad days and today is one of them. Tomorrow is a new day. It’s a new opportunity to have a less painful day. A less down day… one that could be a happy day. It sounds strange, but in our world of chronic pain – pain and happy go together. You cannot let the pain take your happiness away. If you don’t allow yourself to be happy while in pain… the alternative is not a life worth living.

IMG_0379Yesterday was a pain and happy day. I was having some issues walking, but I was determined… I couldn’t let that ruin our family day. We started the morning out playing soccer with my exercise ball in our bedroom (don’t tell the kids) – I don’t think I’ve laughed that hard in a long time (let’s just say we were almost in the market for a new tv)… followed by an awesome breakfast the kids made for Father’s Day and then we all piled in the car and spent the day together. A day which included walking… which was extremely painful. In this instance I was not about to let the pain get in the way of everyone’s happiness and just as important mine. We had a beautiful day which I managed with pain meds, laughter, joy and a lot of positive self-talk. A pain and happy day.

So back to my question… how honest should we be? Maybe I will try another approach. Maybe I’ll use the baseline approach and if I’m feeling my normal pain, I’ll say, “I’m doing good!”… I might even try to start saying, “I’m doing great!”. If I’m feeling worse than normal, I can just say “It’s not a great day”.

Our lives are not predictable. The only thing we know for sure is that there is going to be pain, we are going to be uncomfortable. We are going to have days where we want to scream and shout, stomp our feet (although that would cause more pain), and cry… but after you realize your life could be a lot worse and that you are surrounded by the best family and friends anyone could ask for… you realize how blessed you are. Today may be hard… but there’s always tomorrow.

Thanks for stopping by! I love hearing from you either by email or comments.

Stay cool and relax… Gentle hugz!

Tamiko

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How do you Recover?

How do you recover? I never seem to ask myself this question. I know I should plan for pain. I know when I’m going to be in more pain than normal based on my upcoming activities. But for the most part I have an attitude of “I am going to enjoy myself and deal with the consequences after...” It may not be the smartest approach, but I tell my husband all the time… if I stop doing things because of my pain, I’ll never do anything! Pace yourself… we hear this all the time. Stay away from stress… another major tip we hear… but, honestly, pacing myself stress me out!

In the last few months I have created my own awesomely good days… I have sewed with friends, went on vacation with my mom and daughter, surprised my dad with a party for his 80th birthday and watched my daughter prepare for her prom. After each big event it takes me weeks to recover. I do my best to pace myself and stay away from stress, but as you know… life happens.

Recovering from any activity that takes energy has to be balanced by down time. Throughout all those great events, I have endured the longest flare I’ve had in years. I have no idea what is going on, but for one reason or another my body decided it didn’t want to manage the pain efficiently. It just wanted to be in pain … every… single… day. If it’s not the pain from Fibromyalgia, it’s the pain from IBS. Thankfully, my depression has been somewhat under control.

If you ask yourself, is it worth it? As I know many of us do… on a regular basis… especially when in the midst of an ongoing flare. When it’s all said and done, the answer has to be a resounding “YES!”. There are nights when the pain from my day’s activity is so great, laying in bed is painful. My legs are throbbing from the inside out and my neck and shoulders hurt so bad even my skin hurts. I have taken more pain meds in the last few months than I have in years. It’s been the only way I am able to sleep… and let’s be honest, in the middle of a flare, who really gets good sleep? I generally wake up around 2 or 3 and end up reading until I can fall asleep again… and then wake up a few hours later. This does not make for good sleep.

I work full-time and I thank God every day that I am able to work from home. But… working from home means it’s really hard to call in sick. I mean you have to be pretty bad off to call in sick. At least I do. I feel bad if I have to stop working early because I am in too much pain. There have been many days where I’ve felt like I could have done a better job or worked a little harder, but due to this ongoing flare, work has been tough. On the plus side, since I have such a hard time sleeping, there have been more than a few days where I’ve started working between 4:30 and 5. Not only am I thankful that I am able to work from home, the folks I work with are extremely supportive and understanding. I couldn’t ask for a better working situation. I can’t even begin to imagine what it would be like if I wasn’t blessed with the work situation I am in.

In preparing for my daughter’s prom night, I had to leave abruptly from her make up appointment because I all of a sudden felt really sick and could not endure standing (or sitting) any longer. My husband picked me up, and as he drove me home I felt like a loser mom for missing out on even one part of this big day. I went home and laid down for 45 minutes so I could recover. There was literally NO WAY I was going to miss seeing her all dressed up with her date and friends. I was not going to miss the opportunity to take pictures at the park. I knew when I got home I was going to collapse… and I did. But it was worth it. I also realized that missing out on a small part of the day so I could enjoy the main event was something that I needed to do. It was a blessing that my cousin was at the appointment so I could leave. Recovery…

We surprised my dad for his 80th birthday 10 days ago. All the preparation and work towards the event was so worth it when he walked in the room and I saw his expression. At the end of the night when I got home, I literally crawled up my stairs to my room, took a bunch of pain meds and went to sleep. The next day was my daughter’s 17th birthday and I had family visiting from out-of-town… we all got together for a big breakfast at my folks house. Although I could barely walk, the pain was not going to win. We ended up creating more memories of fun and laughter as we ate great food and visited with each other. That day ended with a trip over the hill to Santa Cruz with my daughter and her friend for dinner to celebrate her birthday and watch the sun set. A perfect week-end.

I am determined to enjoy my life. How do I deal with the non-stop pain? How do I recover? I think about how blessed I am. I think about how much joy is in my life. I think about the look on my dad’s face when he walked into that room full of people who have loved him for decades. I think about how much laughter there was on vacation with my mom and daughter. I think about how damn beautiful my daughter looked on her prom night. What could stop me from enjoying these moments? Nothing! I cannot imagine missing these moments. I say screw you pain!!! (I could use more harsh words… but… that would be rude)

On this May 12th, Fibromyalgia Awareness Day… I say let your joy, laughter and blessings be your recovery. Enjoy life, don’t kill yourself doing it, but definitely don’t go the other extreme and stop living. You deserve better!

Before I say good-bye, I have to say how thankful I am to be recognized for the fourth year in a row as one of the top bloggers in Healthline’s 2015 Best Fibromyalgia Blogs. I am so proud to have made the list, it means a lot… and Congratulations to the other winners!!

2015Healthline

Thanks for stopping by… I hope today was an awesome day for you!

Tamiko

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Make 2015 a Better Year!

First things first… Happy 2015!! I bet we can all look back on 2014 and… well… sigh. This can be a sigh of happiness, sadness, relief.. or just a sign that we are still breathing. 2014 was a heck of a year. One thing I know for sure… 2015 is going to be better!

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My 2014 memories/ 2015 goals project

I had a new year’s resolution in 2014 that I would blog at least once a month. Fail. I had 10 goals that I outlined at the beginning of the year as part of my annual family project. Let’s just say that I believe I achieved two of those goals. While we worked on our project this year I paid more attention to identifying achievable goals. I didn’t do the copy/ paste/ then change the words goals that I have sometimes been setting in the past. This year I want to be able to say I accomplished at least half of my goals. (I will be honest and say I did keep the “finish resume” goal that I think has been on my list for the past 10 years. This year I am determined to achieve this goal!). To the right is a little picture of my completed project. I really look forward to doing this every year. As the kids get older, it amazes me that they are still willing to do this. In fact, it feels like they are more willing now than they were in the younger years. We added my god-daughter in the mix this year and we had a day full of love and laughter. I can’t think of a better way to start 2015.

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My daughter’s rag quilt…

While preparing for my project, I thought about this past year and the memories I will cherish… my son graduating from UC Santa Barbara, both the kids getting their driver’s license, going to the movies with my  mom, my daughter’s sweet 16, going to Utah to see my dad present his experience in the Japanese internment camp at Weber State and visiting Topaz with his friends… these are all memories that I hope I remember forever. There are also the memories that will stay with me because of the challenge to stay positive in the face of difficult times… supporting my friend when her mom passed away, my mom’s frustrations with her health, friends in the hospital… me in the hospital. Even with the challenges, there’s always the positive. I will forever cherish the incredibly thoughtful gift my  beautiful friend gave to my son as a graduation gift. She took my son’s soccer jerseys from the many years he played and made the most amazing quilt. I took this queen sized quilt and made it a part of my project this year. You can see I printed the picture of his quilt in black and white and added some color to parts of the picture for texture… in addition to this quilt, she also made my daughter and I rag quilts last year. I know I’ve said it many times before… and I will continue to say it… I am so so SO blessed to have such wonderful, supportive, loving family and friends in my life.

I didn’t set a goal for the number of times I would blog in 2015 on purpose… writing my blog does not always come easy. My husband has this very strong belief that I should write more. I love the strong support he always gives me… but I value your time as readers so I am… wait… stop. Let me invite you into my mind for a moment… I had an ADD moment while writing this… I am pretty sure that just typing the word “blog” twice in this paragraph kicked my brain into thinking… “It’s the beginning of a new year, I am going to change the theme on my blog…”. As you can well imagine, this thought led me to spending hours browsing the WordPress themes and then I actually tried one on for size and didn’t like it… activating the new theme and going back to my original theme completely screwed up my blog so I then had to spend time fixing it back to how I wanted it… I guess that lasted longer than just a moment. It doesn’t stop there friends… while I am going through the themes, I see all these photography friendly themes and I think to myself… “I really need to get my pictures organized…”. Just as I’m about to open up my iPhoto library I pull myself out of the vortex… before my brain keeps going and going and going and… SNAP! I’m back. Damn. AS I WAS SAYING!! Okay, breathe… as I was saying, I value your time as readers (which isn’t actually evident in this particular paragraph)… I really do value your time as readers (now I’ve said it three times so you really should believe me). Getting back on track… you are all important to me and I want to stay true to myself. I have to be in the right state of mind to write. That’s really what it comes down to. I want to spend my time focused… scratch that (I want to be focused but I know my limits!)… I have to be able to set aside a good amount of time to write something that is meaningful to me. It usually takes me hours to write one post. I write, review, re-write, review, re-write… you get it. I’m sure those of you that have your own blogs do the same thing. It’s keeping that balance while sharing my experiences between honesty and positivity. I never want to bring you down. Our bodies and minds do that already. If you are taking the time to visit my blog, I want you to laugh, get uplifted and most of all feel like you are not alone.

Fibromyalgia is such a frustrating and sneaky disorder (I always want to call it a disease but I know that’s not right… but at the same time disorder just doesn’t work for me)… anyway this shit makes me feel like a hypochondriac. I went to the Podiatrist for my foot because I couldn’t walk on it… he gave me a boot, I bought 3 pairs of expensive shoes and weeks later… the pain has moved on to somewhere else in my body. I get this weird feeling like a bee is continually stinging me in the back of my neck… is it real or fake? I go some days feeling like I can climb Mt. Everest (okay maybe just climb a small hill) and other days I can barely get out of bed. I can go weeks having mostly good days and then boom! flare. I guess what I’m saying is that I have to keep reminding myself that my body forgets what pain feels like as soon as it’s gone (even if for a brief moment). I question my sanity… a lot. I feel like I can never say I am feeling good because I’m afraid people are going to think I’m cured… that nothing is really wrong with me. I’ve never really said that out loud. It sucks to always feel so guarded about your health. I think we need to feel safe in expressing how we truly feel without worrying about the future repercussions. We don’t want to have to “justify” or explain our pain. It just is what it is. Some days are good and some days are bad. We need to be able to enjoy our good days to the fullest and not worry about when the next bad day is coming. Right? Right! I think the only person getting in my way at the moment… is me.

I sai101411_Rogue2_180d that all that because over the holidays, like every year I go, go, go to get the house ready, get the gifts purchased and wrapped and make my annual calendars. For the first time ever I didn’t scrapbook the calendar pages. I created digital calendars. It was really difficult for me to let that go and accept that there was just no way I was going to be able to get the calendars done. I didn’t have enough time and I didn’t have the energy. I felt like I should have been able to do it… but my body said… well I think it shouted, “NO!”. So… I listened. I accepted that I do have the many disorders/ conditions/ diseases that are on my medical chart and I gave myself a break. Even on the days I felt good, I knew I would still experience pain – that although it’s not always present, it’s somewhere lurking like a stalker. I don’t want to be the dumbass that is alone in the dark, saying “Come out, come out, wherever you are….”, I’m happy to let it lurk. Those are the folks in the scary movie that always get killed off first. I know it’s there… I’m going to do my damnedest to keep ahead of it. It’s not going to kill my spirit.

So back to my goals… I am going to keep that pain behind me as much as I can, both physical and mental. I’m going to work harder to take better care of my body and mind in 2015. I hope that you take the time to set some goals for yourself. Be kind and honest – set goals that you can achieve based on the reality of your health. Say it out loud… “2015 is going to be a great year!”… and it will.

I wish you all a healthy, pain-free 2015 sharing lots of love and laughter with your family and friends.

Thank you for stopping by!

Tamiko

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Great Fibromyalgia Resources Available!

Today I was reading an article in Medscape entitled, “Fibromyalgia: The Latest in Diagnosis and Care“.  I, like many of your I’m sure, have an extremely short attention span. For one reason or another I actually read this entire article… and thank goodness for that! At the very end Dr. Clauw states, “FibroGuide is a free CBT program for FM patients that has been shown to be effective in a clinical trial and can give patients access to CBT treatments to which they might not otherwise have access“.

While reading I realized it’s a good time to remind every one of some resources that have helped me and may, in turn, help you. So enjoy and I hope this information helps you in some small or even better BIG way!

All of these resources, and much, much more, are available on my Tools & Resources page:

FibroGuide: Take the time to check out this link, it’s not just a guide, it’s an application that provides personalized steps to help resolve the specific symptoms you are struggling with at a given time (including tips, worksheets and audio exercises!). This  Symptom Management Program for People Living with Fibromyalgia was adapted from the ongoing work in patient education for Fibromyalgia led by David A. Williams, PhD, within the Chronic Pain and Fatigue Research Center (CPFRC) at the University of Michigan.

Knowledge Center: Fibromyalgia, Chronic Pain & Depression

Here are some “best of” compilation pages:

wellnessworkbookI created a couple different journal pages to help me track my progress, you are welcome to use… I hope it helps you!

For pain relief… laughter is the best medicine! @TheBlogess is AWESOME and when I am down, nothing makes me laugh more than when I read her blog…

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Life is Only Getting Better from this Point…

Lord have mercy!

Those three words basically sum up everything I need to say for today’s post.

Tomorrow marks the two-week point after my Anterior Cervical Discectomy & Fusion (level C5-6 ) surgery. September 4th was a momentous day as my husband and I also celebrated our 20th wedding anniversary (a total of 28 years together). I figured only good things could happen if I scheduled my surgery on that day. As I look back on the last month my surgery is only a blip on the screen of events that have occurred. I had a close friend and second mother to me start chemo, a couple of family friends have had scares with what we thought initially were strokes (thankfully the final diagnosis was not as serious), another friend had to fly over to Hawaii to move her mom to a senior facility, a very close friend’s mom had a stroke and we lost her shortly after, my folks lost a friend and a cousin in the same week… another very close friend suffered a loss in her family… the hits just keep coming. It’s all a reminder that tomorrow is not promised. A reminder to live everyday like it’s your last. I can’t imagine supporting my mom through chemo or putting her in a senior facility (not even mentioning the fact that a flight is required every time you want to visit) much less suffer the loss of her passing. The fact that she is 15 minutes away and her health is somewhat stable is a blessing.

I know that my surgery in  no way compares to the life changes other folks are going through. I am going to get better. The surgery is going to make me better, whether it’s mentally or physically. By mentally, I mean I know that the pain I experience is not related to the cervical stenosis. That issue is resolved. Any pain I experience going forward is likely going to be due to my Fibromyalgia. I don’t have to spend any mental energy wondering about it. That said, I thought I would share some of my experiences with you Fibromites in case you face the same surgery. It’s not something to take lightly. I had some very difficult days post-surgery (my husband can attest to this, I think he’s still recovering from it as well). The weeks before the surgery my insomnia decided to drop in and pay me a visit. I would fall asleep and wake up a couple of hours later and sometimes I could go back to sleep, other times I would either read, just lie there and stare at the ceiling or get up and start working… nothing like starting my workday in the middle of the night!

As I started to type this the other day, I was looking at a clock that said 2:58am (ummmm when I actually typed this sentence it was in fact 2:58am). Instead of sleeping I ended up watching the Dreamgirls movie and attempting to draft this post. When I came home the first few hours were okay. Fast forward to the night and things starting to spiral… first I took a shower, which completely depleted my energy. Then my husband tried to change my bandage… this was a mistake.

Let me just digress for a moment. While in the hospital everything was okay. I had an IV that they kept shooting antibiotics, anti-nausea and pain meds in for the first 24 hours. I didn’t get much sleep the first night but it wasn’t for lack of trying – the nurses and dr.’s kept coming in every hour or so to check on me. I was sooooo tired on day 2, when the PT person came in to get me up and walking and teach me exercises – I literally fell asleep in the middle of an exercise. I had to finally ask her to come back later. Since I didn’t complete the PT, they couldn’t release me so I ended up staying another night. The second night the nurses left me alone most of the time so I slept for hours and hours. On Day 3 I woke up feeling pretty good and I wanted to come home. This, my friends, was my first mistake. I should have waited another 24 hours. I wasn’t ready.

freak-out-catBack to the first night at home… as soon as he started to take the bandage off, I started going into a full-on panic attack. I freaked out… and when I say freaked, I mean F-R-E-A-K-E-D out!! I had to literally talk myself off that cliff, use every coping skill I knew to calm down. I had so many places where they had used tape at one point or another that my skin felt raw. The pain I felt as the tape was getting pulled off literally felt like my skin was getting peeled off (sorry for that super gross reference). Okay. I know I’m being overly dramatic, but that is honestly what was going through my head. In my mind, the tape was going to pull all my stitches out and I was going to have to go back to the hospital and have them fix me up. Okay, I now accept the award for drama queen with pride (okay not pride, I’ll just take the damn award).

At this point my nausea went into full swing. This was my biggest issue from the moment I got into my hospital room and they had my pain under control directly after the surgery. They had tried a couple of anti-nausea meds until they gave me one that worked. When I went home, I didn’t have any anti-nausea meds… BIG F’ing MISTAKE! Oh my Lord. My husband tried calling the advice nurse to deal with it and they gave me a prescription… for something… that didn’t work! ugh.  I called again the next night because I was miserable and the advice nurse talked to the spine dr. on call who advised me to go to the emergency room. Ummmmmmmm… that’s not gonna happen. Tip: If you are having surgery on a Thursday or Friday and you go home over the week-end… make sure you have all the meds you need BEFORE you leave the hospital.

schlaflos

The picture I finally decided to go with…

Day 3 – miserable… called the charge nurse for the spine clinic and asked for the drug I had been taking in the hospital for the nausea and my husband went back to the pharmacy for the second time in 24 hours. I also decided to back off the pain meds a bit and stop taking the stool softener (okay, I apologize again for too much information). The combination of these three things finally resolved my stomach/ pain issues and things started to get a bit better… except… except… well except for that damn insomnia. (Okay, seriously… I went to go look for a picture to put in my post to represent insomnia and as I did that I was in a group text with some friends… then for one reason or another I decided to go look at Facebook, which I never do anymore and ended up going through my timeline and sending my mom a life on one of those FB games which resulted in me actually playing the game… and then I checked my email… and then I realized I was in the middle of writing this post and I need to finish it! Geez Louise… ADD at its best!!!!! Annnnndddddd of course, the best part is I still need to find the picture I want to include.) As I was saying… the insomnia was kicking my ass.

Days 4, 5 ,6 – let’s just say that being up at 2:58am was normal for me. I would do whatever it took to finally fall asleep sometime after midnight… I’d wake up an hour or two later and basically that was the extent of my sleeping hour(s). Miserable doesn’t even begin to describe how i was feeling. Walking zombie… very frus-us-trated (that’s how my daughter used to say it) walking zombie… but I was trying not to complain because my nausea and pain was pretty much under control. I watched a lot of bad tv… walked around the house, moved from the bed to the couch to the other couch to the recliner to the couch… you get my drift (I love to say that).

Days 7, 8 – I gave up… called the charge nurse again for the spine clinic and she referred me back to my primary care physician. Ummmmmm, can I just tell you that I almost lost it on the phone with her? Not her fault, she did the right thing, but my frus-us-tration was getting the better of me. I am very thankful to Kaiser and their staff, they really do an excellent job. My PCP got back to me within an hour on a Friday… at 4:30pm… and by 6:00 my husband was back on the road for his 3rd trip to the pharmacy since I came  home. My PCP gave me two different meds to try (I love that she gave me options). I tried the Restoril out and on the first night… I slept for 2 1/2 hours. On the second night I took the Trazodone and at 4am I gave up and took the Restoril and slept again for 2 1/2 hours… this was the night I watched Dreamgirls.

Rainbow womanDay 9 – SUCCESS!!!!!! I doubled the dosage of the Restoril and ladies and gentlemen… taadaaaaaaaa!!!! I slept through the night. Everyone in the house celebrated. That’s a lie. My husband and I celebrated… all day long I walked around the house shouting, “I SLEPT THROUGH THE NIGHT!!!!!”. It was like the first time the kids slept through the night… you know the joy I’m talking about? I felt like a brand new person. It had been months since I had slept through an entire night.

So… this is a super long post, I hope you don’t mind. I’m now on Day 13 and I’ve been sleeping pretty well, managing the pain and nausea and basically feeling a bit better every day. I’m on my way. Tomorrow I get to leave my house and go in the car for the first time in two weeks. I am going for my first post-op appointment. I’m hoping they clear me to at least ride in the car for short rides. I hope to go back to work sooner rather than later (I mean in a perfect world I would not have to work and I’d just scrapbook and go to the beach and swim in my olympic size infinity pool at my beach house big enough so all my friends and family could stay with us at the same time… “and now we return to our feature presentation – Reality“). I’m not ready to work just yet, I still lay down most of the day. But I feel pretty good.

In addition, I’m proud to say that in the last month, my son got his driver’s license and started a new job, my daughter started her junior year in high school and she got her driver’s permit and I am surrounded by the most amazing, supportive, loving family and friends a girl could ask for!

Thanks for hanging in there and sharing this experience with me. Things are only going to get better from here. I believe it.

Stay cool, stay chill, stay calm and pain-free.

Gently hugz!

Tamiko

PS. Did I mention… I officially started menopause this month. Watch out family, here I come!!