fibro fog

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Integral Tai Chi is My New Depression/ Fibromyalgia Pain Drug of Choice!

“My body is healthy… My body is healthy… My body is healthy… My body is healthy…” I am chanting this in my head while next to me a lady is not so quietly snoring… interestingly it does not bother me, although there are moments when I want to laugh (but cross my heart…. I don’t). While I chant this over and over in my head, I scan my body for pain and if I find any, I mentally push it out of my body. You are wondering what I am talking about… I get it, I would be wondering too.

This is the relaxation segment of my Integral Tai Chi class. It is the last 30 minutes of the 2-hour class I have been taking… my new favorite depression/ pain drug of choice. As I am laying in the dark on my mat in the “corpse” position and the instructor has directed us to relax every part of our body and told us when we awaken our bodies will be healthy. It becomes my chant while I lie there for the next ten minutes. I feel like this class has changed my life. Sounds pretty crazy, right? Well, take me seriously and find a class and give it a try. Here’s the class description:

Integral Tai Chi is a self-healing system that integrates tai chi, yoga, relaxation and meditation to heal the mind, body and spirit. This comprehensive approach involves a series of 10 body movement postures each designed to increase balance, awareness, endurance, flexibility, flow, concentration, energy and spiritual transformation. Integral Tai Chi can be easily learned and practiced by all ages and body types.

I have been able to do things that have caught me completely by surprise… okay, for example… remember in Karate Kid that crane move that all your friends growing up have done and said “I’m the Karate Kid!!”…. I CAN DO THAT!!! SHUT UP!! I CAN!!! Unbelievable… I can actually balance on one foot!! I almost fainted with surprise the first time I did it… I started to giggle. I really did. No one can even understand the gravity of the situation. balancing on one foot, WHILE lifting my arms UP IN THE AIR like that is just CRAZY!! LOL!! For all you modern folk that do not remember Karate Kid (the original… God forbid…) it’s the Crane pose in Kung Fu Panda!

I can’t explain it, I don’t get it myself, but the stretches that are done… although they definitely are challenging for me, feel soooooo good! I feel really good both mentally and physically when I finish this class. I have felt like a totally different person the last three weeks. My husband tells me he is afraid to break the spell… he wishes I could take this class every day. I think that might be a bit much. :) I mean, what is the message he is sending to me?? LOL!

For me personally, I think I said it in a prior posting, the mental effect that this has had on me is so significant… the healing of the mind and spirit and the pure focus on positivity and exiting frustration, stress, negativity from the body/ mind… this is just what I need. I sleep better on the nights that I go… although this time, my beautiful dog decided to wake me up at 4:00 in the morning to go outside and I decided to write this blog posting instead of going back to bed. I also have been able to relax enough to read an actual book… this is amazing. I haven’t read a book from beginning to end in so long I can’t remember when. I have finished three books in the last two weeks. I usually start a book and then after the first couple pages or chapters, put it down and never pick it up again.

I know a lot of you are in pain. If you are in the bay area (San Francisco to San Jose on both sides of the bay), these classes are FREE, take advantage and give it a try… “listen to you body” and do what you can, but stay for the last 30 minutes. If you are not in the bay area, find a local class and it is very possible that you may have free classes as well. I understand this ITC organization is in Southern California offering free classes (this is a non-profit organization). This particular group is AWESOME! I think you can tell, I am pretty jazzed about this… just a little bit… :) I’ve been in pain a very long time… This is the first time I have found something that is FREE and works and not a drug! nice… it’s a blessing.

http://www.css-sanjose.org/eng/itc.html

  • 30 minutes of warm up
  • 60 minutes of 10 body movements
  • 30 minutes of relaxation and meditation

I could barely walk when I went to the first class… I am walking significantly better… ask my dog! :)

Thanks for reading! Stay cool (literally! It’s been pretty hot out there!)

Hugs….

Tamiko

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Who is Your Lighthouse? Every Fibromite Needs At Least One…

sometimes life is not what it seems. these days, every day feels that way to me. i am not working right now due to my medical situation, my blogger friends will know without a doubt why… but i feel guilty. i can’t quite work out my emotions. this is not a vacation, this is not time to work, this is time to heal. wow. time to heal. i say it out loud and i still can’t believe it. if i do things that i believe are healing for me, i still don’t feel right. this is crazy. i am a grown adult. i am lost.

i can remember the moment the words came out of my mouth. “my doctor has taken me off work.” from that moment on, there was no turning back. i was both scared shitless and relieved at the same time. so many questions going through my head, i couldn’t turn the volume down.

  • would i be able to heal?
  • would i have a job to come back to?
  • what does this mean?
  • how is this going to effect my friends at work?
  • what will my children think of me?
  • can i make this change?
  • how will my husband handle yet another burden on his already heavy load?

question after question just kept coming up and before i could answer another question would come up… and then all the forever questions… oh shit what will i do if something happens to my husband? i can’t take care of myself, much less my children… why the hell did this happen to me? why now? why did my friend just pass away without giving me the chance to talk to him just one more time to hear his crazy ass laughter? why can’t i pick and choose when i want to be in pain? why can’t it be obvious that i have a medical condition so people will know i am not okay? (i mean… seriously, i much prefer to look anti-social at parties… that is so much better! [btw, i just told my daughter that sarcasm is bad]  i always end up sitting in one place or better yet even… like today, having to take a nap because the pain was so bad… nice!) i know this is why many of my chronic pain friends do not go out, but that is not the solution. i want to go out and be with friends and family…

warning – i digress here….

i am watching my children, nieces, nephews, and their friends grow up and what a generation we have coming up around us! these. children. amaze. me. their determination, assertiveness, independence… they have it all. they have grown up with so much technology and knowledge compared to what we grew up with. they have access to so much more information at their fingertips… and they access it and use it with ease… we have raised some strong-minded youth. they know what they like, what they want and by the time they can vote … they will not hesitate to make their opinions known. it’s an interesting time. for me personally, sometimes i just want to scream, i get so frustrated trying to raise my children. they know what they want, have so much knowledge, i can’t battle them – don’t have the energy to fight them. most the time i just want to hold them so tight and not let go. i know they will leave me soon and i will only see them when they want to visit. my time with them will be  solely on their terms. their time with me so far has been on my terms. the rest of their life will definitely be on their terms…. how did i get to this topic? hmmmmm…. just typing and this is what came off the top of my head.

and now back to my original post…

as you can see, i am having a very difficult time focusing in one area. i am struggling to wade through this quicksand of emotions. i am trying to journal again. i thought that it would help me “find myself” so to speak. so far not a word on paper in my new pretty journal. zip. nada. nothing. the big zero. “How to Find the Inner You”, “How to Redefine Your Life”, “Where are You?”, “The Map to the Real You”, “The True You”, “This is Your Real Life”, “Your Life Begins Now”, “Life After Chronic Pain”, “Redefining the New You”… etc. all titles of books that would really help me now… if they existed (and they probably do, i just don’t want to pay the price for them, i mean,  after the title, what the hell do I want with them?) i have no patience to read a self-help book… i am just really trying to find a way to get myself to stop! write what i’m feeling down! and listen! and really… is this possible? i have journaled all my life, but for some reason, it really is asking a lot of me. you’ll just have to take my word on this one. (by the way, if you are thinking of writing a book and you were planning on using one of those titles above… ummmmm…. go for it. i’ll just take a one time cut. :) i know God has a path for me already written, i just need to stop! and listen! to Him. i never was very good at listening… my husband can definitely vouch for this. (oh man! did i really just put that in writing?)

so… why the lighthouse image for my blog this week? i’ll tell you why. two beautiful women celebrate their birthdays this week. i look to these women to provide safety in the dark for me and they have no idea how much they save me on a continual basis. one beautiful woman because she is and has been my best friend for the past 20+ years and has been there for me through thick and thin and even though i know i don’t call as much as i should… just knowing if i ever need anything i know she is there.  she gave me the very very best gift of all, my beautiful goddaughter. i would never have made it to this point in my life, if not for her love and strength… i would not be who i am without her in my life. she taught me how to be a professional, how to know and appreciate God, how to be a parent, how to be a girly-girl and without her in my life i would not have been so honored and blessed to know and love her Mother (and yes that is with a capital “M”!)… it would take a lifetime to just say how much she has blessed my life.

the second beautiful woman because through the friendship of our children, i have been blessed with the friendship of this woman. she has given of her heart over and over and over again and always ever so quietly. there is no way i would have survived the last six years without her friendship. she has a calming effect on me the moment i know she is around. her thoughtfulness, sense of humor, no bullshit attitude is so awesome! i look forward to strengthening our friendship with each birthday we celebrate.

they are my lighthouse in the storm that can be my life. dependable, steady… always there. i celebrate them. i hope that all of you have a lighthouse in your life. there are definitely a few other folks who are in this category who i will celebrate in a later blog…

thank you for reading! stay cool… please let me know how you are doing, leave a comment and let me know what’s on your mind.

take care and here’s a gentle hug for all my chronic pain readers.

tamiko

PS. Thank you so much to everyone!! I just passed 3000 hits to my blog this past week… that is too amazing… THANK YOU!!!

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What’s Your “In Your Head” Morning CheckList? From One Fibromite to Another…

… i am running about to go up some stairs … anndddd I’m awake! well, my brain is slowly adjusting to the morning fogginess attempting to determine dream vs. reality. ummmm running? definitely dream! as i slowly go through my morning checklist in my head…

  • can i move my legs? let’s see… i can already feel that numbing-tingling-i’m-gonna-go-limp-on-you feeling in my knees and i haven’t even gotten out of bed… great. it would be one thing if i had maybe been on a 2-hour bike ride first, but this is ridiculous… oh yeah, it was all that running i just did. the top of my legs, right on that bone area… as long as you don’t… well let’s just say touch it… we are all good! maybe i should just invest in shin guards… soccer fever is in the air, right? hey, my thighs? alllll goood!!
  • how about my feet? toes are good – check! bottom of my feet are good, yes! i hate that pins and needles or i should say spikes and knives that go on for about 1-3 minutes that feels like 15 minutes that make me want to scream in pain! AHHHHHHHH!!! but i can’t complain about that at this moment… woohoo!! tops of my feet were feeling a bit of “the jolly green giant stepped on me” pain, but i can deal with that.
  • i’d love to skip that middle of the body – ’cause … well … it’s just a bit massive so in my mind it’s just best sometimes to forget about it. (“body image mom!” i can hear my daughter saying because i don’t like to say negative things around her… i don’t want her growing up constantly obsessing about her body image. shit. i hate when stuff comes back on me like this.) okay.  anyway, my tummy is upset as it always is these days when i wake up… when i am awake… pretty much all the time… and i don’t end up with a beautiful bouncing baby 9 months later either!! let’s be very clear — i don’t want a beautiful bouncing baby at this time in my life, but for feeling sick like this? you’d think it would be the end result! i keep thinking i should break out my maternity clothes because my stomach is all bloaty and upset all the time, then i remember, nope just another side effect. damn. (and i thought i had an excuse to go clothes shopping!)
  • arms…. oh my arms. yup! let’s just say they definitely are not going to be doing any heavy lifting today. light lifting is out as well. driving? not today either. wrists? high on the pain level scale… and shoulders? high, very high.
  • neck? well… unfortunately that is not a good place for me. neck and shoulders is where i carry my stress. i have to constantly remind myself… r-e-l-a-x! i do a lot of the deep breathing exercises and relax my neck and shoulders during that time because i constantly forget to relax there… pain is high. i will get up and do my exercises and hopefully that will help.
  • head? i have a headache this morning…

guess what day today is. just guess. no really. because i am in bed saying to myself it’s definitely a “cane” day and i’m not talking sugar cane… it’s definitely a day to take a long nap and rest. although i will try to convince my husband to take me to the dog park, my favorite place to just get away and relax. it is, of course, saturday. because that would be my free day and it has become my “down” day. literally. after working 5 days and wanting to have a fun day, i always end up with this “down” day. which actually isn’t the worst thing that could happen… i just don’t like things forced on me.

this week has actually been great, we’ve had friends from out-of-town visiting to make for better days and last night we had a great night out. tomorrow we will go to the beach. it’s not the usual week. no complaining from this girl!!

what’s your usual “in your head” morning checklist?

wishing you all a pain-free week-end! thanks for stopping by… stay cool!

tamiko

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Maybe There Are Just Too Many Maybe’s… Making Decisions With A Foggy Brain

Let’s say, for instance, you have to make a life altering decision. How do you go about thinking through this decision? Do you talk to your friends? Do you go in a dark room and think, think, think? Do you sit down and make a list of the pro’s and con’s? Do you talk to your counselor? Do you talk to your significant other? Do you talk to your dog? parents? What do you do?

Let me give you an example. You have the option to make a change that will make a significant difference in your income, your social life, even your daily life and will cause you to go through some pretty major positive and negative stress. You can either make this change OR you can keep  going in the life you have. The life you have is not bad. You make a pretty good income, you work with some of the best people on earth, you have some pretty major stress.

So, what’s the problem? Well, that was just an example. My question still remains. What do you do when you have a problem and you need to think it through? I struggle with this all the time when I have issues. With a foggy brain, when I try to figure things out… well, let’s be honest… I don’t get to the “figuring out” part. I start to do the research, but I have a difficult time reading through the policy jargon. The stuff that used to be so easy for me… this is the shit that I used to read through and help OTHER people understand. Now I’m the one that can’t figure it out. What. Happened. To. Me.

I have my good days when I can be a Lawyer! Of course these are my husband’s worst nightmare days. He should really pray these are the days he doesn’t get into an argument with me… because if I’m feeling good, I’m probably going to really want to use my brain! (God help him!) These are the days that I will willingly work 16 hours to get through as much email and paperwork as possible. I can process stuff very quickly vs. the normal time it takes. Quickly. This is how I used to work in the late 80’s and 90’s and early 2000’s bcp (before chronic pain).

I can remember those days. I used to work 16 hour days… everyday. I used to work 6 days a week… every week. My life was work, work was my life. Hmmmmm, I don’t think I should look back on those days and say “those were the good ‘ol days!”. There were definitely some GREAT days! I had a lot of fun working, I learned a hell of a lot… but I gave up a hell of a lot as well. I am certainly paying the price now. People still expect the same output or I should say, people would still like the same output. I also expect myself to be able to work like that. I still push myself to work those hours. I don’t know how to work an 8 hour day, stop working and then figure out what to do the rest of the time. Well, let’s be real here… after those 8 hours, I’m pretty much useless. BUT, IF I had energy after 8 hours, what would I do? I have no idea. There is so much to do… where would I start?

My problem is… I have so many things I want to do, I am overwhelmed. If I wasn’t working at all, where would I start? Where would I stop? How would I prioritize? The thing is… why think about it at all if there’s no chance at the moment?

So… again, I have this question about how to make this big life altering decision. I have this damn foggy brain. I have all these questions in my head. I am completely overwhelmed. I know there are all these processes you can use to make decisions… and well… I think when it comes down to it… maybe I’m just not ready to make this decision. Maybe I’m afraid. There are just so many Maybe’s.

Maybe. Maybe. Maybe. Maybe. Maybe I’ll figure out what I want to do soon.

But for tonight… I think I’ll go to sleep… and maybe, jussssttttt maybe, when I wake up I’ll have an idea of how to think through this decision!

Y’all stay cool! Thanks for reading…

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A Simple Post: My Fibro Journal Template… Use It & Track Your Daily Progress… YES I SAID PROGRESS!!

Hi everyone!

I created this template based on the 10 week Level II Pain Program I took at Kaiser and I have used it every day for a month. It has helped me remember to take my meds, really understand my sleep (lack of sleep), how my pain goes up and down, when and how often I flare and… when I talk to my dr… I can actually speak factually (what a concept)!

Try it, tell me what you think… these are just pictures. I posted it a couple of weeks ago, but I thought if I showed you what the pages looked like, you would be more apt to try it out. :) You can download the template in my Awesome Resources tab.

If you are not tracking your progress… if you don’t use my template… create your own or buy one or do something! It’s important so you can see your PROGRESS!!!! Even if it’s small, you do progress. Even if it doesn’t feel like it… you are making progress. You will have bad days… but you will have GOOD days. Journaling forces you to see the GOOD!!

Okay, I’m off my soap box. :)

Thanks for reading and have a super cool and pain-free week-end!

MY FOGGY BRAIN: Daily Fibro Journal - Page 1

MY FOGGY BRAIN: Daily Fibro Journal - Page 1

MY FOGGY BRAIN: Daily Fibro Journal - Page 2

MY FOGGY BRAIN: Daily Fibro Journal - Page 2

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Eczema, Fibromyalgia, Chronic Depression & ADHD? Anything Else Want to Join This Party?

Let me tell you something funny. I thought I knew pretty much all I needed to know about Fibromyalgia. I thought I knew all the pain and exhaustion and crap that I was going to know that came with MY Fibromyalgia. Pretty funny, huh? Obviously I was naive and completely missed the chapter about the skin and the effects that FMS has on it. I admit it… I’m a dumbass. I have spent the last 3 days… one, two, three and let’s count today so this is the fourth day… itching like a dog dipped and rolled in fleas. If you could see me now… I have hives all over.

Pain+crazy itchy=psychotic mom. My dog Tani, also has some kind of crazy itchy thing going on. I want to do what she does. She literally walks and randomly throws herself on the floor, I mean this, THROWS herself on the floor and “THUD!” rolls to her backside and vigorously wiggles back and forth to scratch her back. I’m jealous. I want to do this. I know I sound crazy, but she looks pretty content when she’s done.

I gotta be honest, I think I’ve been pretty okay to live with. I haven’t thrown things around the house or screamed for no reason or even cried like there’s no tomorrow (although I’m seriously on the verge). I have pretty much just sat on this couch and played Facebook games on my computer. Non-stop. It’s the only thing that can distract me enough to keep me sane. Thank goodness there’s a new game to play as well… I can’t read or Twitter or watch TV. I can’t sit still or barely write this blog post. I’ve been trying to write it for the past 24 hours. Idle time for more than 10 seconds and I am scratching like crazy. This seriously SUCKS. I mean, I am ready to take any drug offered to make this stop. I am anxious and stressed and frustrated and exhausted all at the same time… AND in pain. How is this even possible?

If you could see me now….

It’s Wednesday and I just finished this post. I hit save and the page exploded before my eyes.

The login page comes up and I login and I come back and … it’s all gone. All my edits are gone up to the point where I had last saved. What do I do? Do I give up and just scream? Do I say eff it and just leave the post yet again for another day? (yes that is EXACTLY what my first reaction is) or do I suck it up and just finish it?

This is me sucking it up… so be nice! hahahahahaha.

So! It is Wednesday (I know I just said that, cut me some slack here) and I am still itching away… I found out the problem, I’m just not sure I believe it. On Friday, like a good patient, I had sent an email to my chronic pain doctor. On Monday he gave me a call and we talked about what the issue might be. He decided it wasn’t a reaction to my meds (good thing). He also thought it would be  a good idea for me to see my Primary Care Physician (PCP). I had a feeling this was going to happen. I still find it super cool that he even calls me to check in with me. Kaiser has such a bad reputation, the fact that he calls me, and first thing in the morning, and then tells me why he didn’t call me on Friday?? Awesome! The people in the Chronic Pain group…. they are the best! I can’t recommend the Level II Pain Program enough!!

I went in to see my PCP and she figures it’s chronic hives… I’m not so convinced. She’s thinking and asks me if I want to go on steroids. Hmmmm, how about NO! Prednisone? Hmmmm… HELL NO! Then she tells me she is going to have this “Roving Dermatologist” check me out. Cool. I’m cool with that. Sounds interesting and a good idea. We wait. I have my husband and daughter in the room with me. We wait. She comes in the room with my PCP (I just like saying that… funny how that acronym just happens to be the same as, well…. you know). Anyway, the Roving Derm and my PCP start talking and the Derm starts looking at my hives and asking me the questions, “when?”, “how long?”, “anything new?”, she wants to see where all the hives are and then she keeps asking me … literally over and over and over again… “did you use any new lotions?” me: “no” okay, “but, have you used any new lotions?” me: “ummmm, no”. It was almost as if she didn’t believe me. I guess she gave up after she kept getting the same answer. She then does this doctor speak with my PCP and pretends my family and I are not in the room. Riggghhhhhtttttt. This 6 foot black man is not in the room. I am thinking… “I wonder if I pinch her, will she notice?” and then I think… I better not, the consequences of that are probably not very good… and just as I finish with my thinking, the doctor bubble breaks and “PING!” we are all in the same room again. My PCP gives me my prescription and we are on our way. I like my PCP, but it’s always kind of a strange visit to me.

Steroid lotion and cream and Atarax. I start day 2 of this lotion/cream twice a day schedule along with an Atarax pill and so far it’s not really working, but I’m giving it a chance… because that’s the sort of girl I am! I don’t like to take the Atarax during the day. I have to get my work done so I will wait until it’s time for bed. This means I’m itchy all day… all I’m saying is… you don’t want to irritate me… you don’t want to irritate the irritable, right? Pass it on.

Okay and here’s the thing… Eczema, Fibromyalgia, Chronic Depression and ADHD?? Good damn thing I’m married!! I’d never find a man with all that shit! What I’m sayin’ is anything else want to join in this party?? You better come quick!! I’m closing the door to this gosh darn party, I’m lettin’ the door hit ADHD in the ass as it closes! This is bullshit!! I did not sign up for this, but I’m handling it. I’m takin’ it. I’m living with it and I’m not going to sit down and cry my eyes out. Try me, damnit!! Okay, maybe some days I’ll cry my eyes out… but not EVERYDAY!! These things do not make for the end of the world… they cannot kill me and I won’t let them kill my spirit. Right? Are ya with me?? Good!

I will say this though!!! 2000+ hits to my blog?? That is WAY TOO AWESOME!! When I first started writing this blog I never ever in my wildest dreams (okay now I am going a bit overboard, I don’t really dream about my blog, but you get my drift) thought that I would have this many folk read what I’m talkin’ about. I love the fact that people understand and get what I am talkin’ about.

You all have a wonderful and blessed day!! Leave your comments, I love to read them!

Stay super duper cool!

PS. I was chicken, you would have pinched her, right? :)